Re: Feeding clinic appt. & big decisions to make on gtube feedings

[Guest guest]

,

I absolutely agree with Jodi. has gradually increase his

daytime oral consumption by keeping the nighttime pump the same and

decreasing his daytime bolus. For example, 's note from school

yesterday says he at 1/2 bagel with cream cheese and a 1/4 cup milk

for breakfast (9 am), 3 pieces of chicken (nugget sized), 1 teaspoon

spinach and 1/4 milk for lunch (11:30 am), 100 ml bolus at 12:15, 1

preztel at 2, 100 ml bolus at home at 3:30 and a small bowl of

spaghetti for dinner followed by a pudding. I have no idea how many

calories that would be, but Dr H is thrilled. He currently gets 560

ml overnight. As of now, Dr H does not want to change 's

nighttime, but is very receptive to cutting back his daytime bolus

even more depending on food consumption.

Good luck,

Judith, Steve, (RSS) and (non RSS) 5 year old twins