Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi Beth You mentioned Matt went to feeding clinic, what exactly do they do at these clinics as we are looking into this for my 10 month old daughter, and wondered whether it is worth it? Brigitte IEP and good news Hi all, I think I get in the habit of only posting when something bad is going on, so I thought I would share some of the good. Matt's teacher requested an IEP meeting today. She and the special ed teacher feel like Matt is doing so well in school he doesn't need the 5 hours/week of special ed, but only an hour a week. His reading is right on for his grade and his other academics are fine, with the exception of his handwriting. Yeah! He has made tremendous strides this year, mainly due to the school and the fabulous teachers we have here. Matt is also eating. For some of you who know our history, this will be a big shock to you! Matt met with a feeding clinic in November but it was a bad experience for us. But out of that, I was desperate and really started pursuing other options. We have found and been approved to see a speech/feeding therapist that is wonderful. The weekly sessions start in 2 weeks, but she has already made a huge difference in our home. She convinced us to sacrifice calories by letting him eat independently. We were forcing meals and snacks on him, which was getting very ugly. Needless to say, Matt dropped about 4 pounds, right away. But he has actually put that back on and expresses hunger at least once a day. We still have to have scheduled snacks, and he is really only eating one main thing every night for supper, but we are happy with the small steps. So, for now, we are in a good 'patch'. Seems like our lives go in waves, so I am riding a nice one right now! Beth Mom to Matt SGA, genotropin, prilosec, strattera, weaning off ritalin ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 HI Beth When you have another IEP meeting, or perhaps they did it at this meeting, make sure that it stipulates: yes he has improved and does not need such intensive support however his needs will continue to be monitored. I have often seen kids do really well as they get older and will never need any additional support; I've also seen kids who do really well with one particular teacher for one particular year and then flounder the next year with a teacher " who's not so good " (if you know what I mean). I wouldn't want you to loose out and have to start from scratch getting him assistance again if that should arise. Good luck and I'm glad all is going well, it brings some hope to the rest of us!!!!! Take care Debby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Brigitte, We are in Atlanta and saw a local one here. Where do you live? You need to ask around your area and do some research about programs that are available. The program we researched was 100% behavioral based, meaning they didn't take into consideration any of Matt's health problems. It just isn't the program for us, although they have helped a lot of other kids. We had an evaluation at the DuPage Feeding Clinic - Easter Seals a couple of years ago and they were great. If you are in the Chicago area, I would suggest that one. Beth > Hi Beth > > You mentioned Matt went to feeding clinic, what exactly do they do at these clinics as we are looking into this for my 10 month old daughter, and wondered whether it is worth it? > > Brigitte > IEP and good news > > > > Hi all, > > I think I get in the habit of only posting when something bad is > going on, so I thought I would share some of the good. Matt's > teacher requested an IEP meeting today. She and the special ed > teacher feel like Matt is doing so well in school he doesn't need > the 5 hours/week of special ed, but only an hour a week. His > reading is right on for his grade and his other academics are fine, > with the exception of his handwriting. Yeah! He has made > tremendous strides this year, mainly due to the school and the > fabulous teachers we have here. > > Matt is also eating. For some of you who know our history, this > will be a big shock to you! Matt met with a feeding clinic in > November but it was a bad experience for us. But out of that, I was > desperate and really started pursuing other options. We have found > and been approved to see a speech/feeding therapist that is > wonderful. The weekly sessions start in 2 weeks, but she has > already made a huge difference in our home. She convinced us to > sacrifice calories by letting him eat independently. We were > forcing meals and snacks on him, which was getting very ugly. > Needless to say, Matt dropped about 4 pounds, right away. But he > has actually put that back on and expresses hunger at least once a > day. We still have to have scheduled snacks, and he is really only > eating one main thing every night for supper, but we are happy with > the small steps. > > So, for now, we are in a good 'patch'. Seems like our lives go in > waves, so I am riding a nice one right now! > > Beth > Mom to Matt SGA, genotropin, prilosec, strattera, weaning off ritalin > > > > > > ------------------------------------------------------------------- ----------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Debby, I was concerned with that as well, but they are keeping a pretty close eye on him. We have already discussed his teacher for next year and his current teacher has one picked out. THey said Matt would be the first kid placed next year since the classroom environment is so vital to his success. Plus the Special Ed teacher and the counselor (whom Matt adores) will be giving him extra support next year, esp in the beginning to make sure he transitions well. It really helps that the principal of his school has a Special Education background and is determined that her kids succeed. I couldn't be more pleased with all of them. Beth > HI Beth > > When you have another IEP meeting, or perhaps they did it at this meeting, > make sure that it stipulates: yes he has improved and does not need such > intensive support however his needs will continue to be monitored. I have > often seen kids do really well as they get older and will never need any > additional support; I've also seen kids who do really well with one > particular teacher for one particular year and then flounder the next year > with a teacher " who's not so good " (if you know what I mean). I wouldn't > want you to loose out and have to start from scratch getting him assistance > again if that should arise. > > > > Good luck and I'm glad all is going well, it brings some hope to the rest of > us!!!!! > > > > Take care > > Debby > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.