Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 - Each year this same question comes up, and we go back to Dr. H each time with what her thoughts are. 's case doesn't sound super complicated, so I will tell you what Dr. H told families last year. She recommends that if a family lives far away from NY and can only make one trip, and it would be to Chicago for the convention or to NY to see her -- both in the timeframe of late June - early August -- she recommends that if the child is extremely complicated (meaning the child has major GI issues, repeated hospitalizations, may possibly need a g-tube urgently; may have repeated pneumonias, etc.) -- this type of child would best be seen in NY if the family had to choose between the two. If a family has an SGA child that may be RSS, and the family either already has a diagnosis or is looking for one; and the family is seeking diagnosis confirmation; and is looking for advice on how to get the child to gain weight and what treatment protocol Dr. H would advice for their child -- THIS family is better off seeing Dr. H at the convention in NY. The reason why she says is simple: she spends about 4-5 hours giving presentations on her treatment protocol, the results of kids so far, there are other presentations on nutrition, puberty, etc., all that provide comprehensive information to the parents that she can never give in a NY visit. Then in the 30-minute visit that she has with your child (it is private, with closed curtains, and comprehensive measuring equipment onsite), she will talk specifically about your child. Each parent walks away from the Chicago convention visit with a form that is filled out by Dr. H with all of the information and she writes down her recommendations, that you can take back to your local physicians. I hope this helps answer your question about NY or Chicago. Salem > WOW!!! This is a record. The month of April hasn't ended, we still > have three full months to go, and already 29 families have registered > for the RSS/SGA division for the MAGIC convention. Guess the threat > of not having a Dr. H consultation is working.... > > Remember, consultations this year are limited! All local families > must be seen on Tuesday. All families that have seen her before must > see her either Tuesday, Wednesday or Thursday before the convention > begins. Appts are 30 minutes long until Thursday 1pm. After that, > visits are only 20 minutes long. An incentive to pay the extra night > hotel and get in early.... (when Dr. H is also fresh and not > exhausted as well).... > > NO visits on Friday night this year. We are holding 10 or so visit > spots for Saturday night for NEW families only, and new families that > sign up late (there are always families that find out about us in > June and July). > > Jenn > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
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