J Pouch and then Crohn's Diagnosis? - OT

[Guest guest]

Hi All-Has anyone had (or heard of) a J Pouch created only to later be diagnosed with Crohn's? A friend of mine is in the hospital with this exact situation. I am going up there on Tuesday to talk to her about the SCD but the doctor's are telling her she may be looking at a permanent ileostomy. This all happened quite suddenly this year. She was diagnosed with UC, had a J Pouch created in December with a temporary ileostomy, had it taken down in March and then just landed back in the hospital with a new diagnosis of Crohn's.Clearly she doesnt want to have a permanent ileostomy and she is very open to starting the SCD. Thoughts?Jill The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy.

[Guest guest]

At 09:22 AM 4/3/2010, you wrote:

Has anyone had (or heard of) a J

Pouch created only to later be diagnosed with Crohn's? A friend of

mine is in the hospital with this exact situation. I am going up

there on Tuesday to talk to her about the SCD but the doctor's are

telling her she may be looking at a permanent ileostomy. This all

happened quite suddenly this year. She was diagnosed with UC, had a

J Pouch created in December with a temporary ileostomy, had it taken down

in March and then just landed back in the hospital with a new diagnosis

of Crohn's.

Clearly she doesnt want to have a permanent ileostomy and she is very

open to starting the SCD. Thoughts?

Contrary to what some doctors will tell you, surgery doesn't cure gut

issues. It just removes the part that is most affected. If you keep

eating the way you did before the surgery (assuming that is SAD, with

lots of starches), you will eventually redevelop the disease.

So, whether your friend has surgery or not -- SCD is her best bet for

avoiding further surgery. And SCD might prevent the current one, although

that's obviously not a sure thing. <wry grin> In this case,

homemade chicken soup is a very good thing!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

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