Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 > Dana, > > I belong to a local (for me) Autism list as well as this one and on this > other list is a 30-something yr old autistic man who I think would disagree > with some of what you said in your response to Lora. This is a good example of people being individuals and disagreeing. Not all AS are the same. He has posted several > messages to our list in response to " chewing " issues from parents as he > himself is a " chewer " and his insights are quite interesting. Then he is apparently helpful for you, that is good. He still uses > a " chewie " when he needs to. This man has authored several books and is a > frequent guest speaker at Autism conferences. I have been asked by several people to write a book, but I decided to establish an internet website instead, I hate the idea of people paying for information needed to help themselves and/or their children, plus I like the ability to update whenever I learn new things. I speak at local support groups occasionally, but not too much, because my social skills are not very good unless I am in a structured environment, or in court [i am an attorney]. However, if your comment here is intended to convey the idea that an author and speaker would have an opinion more worthy of consideration than mine or than any other person on this list, then I will disagree with that. I believe every person's opinion is valid and worthy of consideration, and noone's opinion is more or less valuable than any other person's opinion. I don't think he considers > himself a " dog " and I am pretty sure that Lora does not feel that she is > treating her child like one either. Probably not, but I would see it differently, if I saw a parent giving their child a chew tube, I would first think that parent was treating their child like a dog, and then I would have to mentally correct myself, but I do not know that other people in society would make that correction, perhaps believing that even the child's own parent considers him to be a lesser human. But then each parent and person is entitled to his/her own opinions. I will give my opinion, and other people will give their opinions, and then each person will make their own decisions. If you disagree with my opinion, then please disregard it. But just know that some people do have the opinion that I have. I think your insights and information > are invaluable to this list and I am always interested in reading your > posts. But I do think that as you said very clearly, all our children are > different. And all of our experiences and much of our info is different and > that's why it is nice to be on lists like this. Gather information that you > think will be useful to you or your child. Not all of it is, and not all of > us feel the same way about things. I think we have to try to be careful > about the tone of our posts, even when we don't share the same opinion or > experience. I am as careful as I can be about the tone of my posts. But I am autistic, and my social skills are bad even on a good day. If the tone of my post sounds negative, then you can just know that I did not intend it to be that way. Perhaps if I sound inflammatory, you can read my messages again and try to make it sound objective, and see if that helps you understand my tone as I typed it. I always try to be helpful, I try to give ONE parent's opinion, or ONE autistic person's opinion, but it is not the ONLY parent opinion, or the ONLY autistic person's opinion. Many people agree with me, many don't. But I do the best I can, and if it bothers you that my social skills are bad, then I would definitely suggest that you don't read my posts, because I appear to learn social things VERY slowly if at all, so I know most of my replies will say something or sound in some way offensive for at least one person. I do not recall that I said that I thought Lora personally was treating her child like a dog, this is what I wrote -- >>But I disagree strongly with the use of a " chew tube " . I think it is treating a child like a dog, which I believe contributes to the notion of autistic individuals as lesser human beings. To me, this is a statement of my opinion. Actually I did try very hard to make it NOT sound like an accusation at all, just a general observation of my opinion. I tried not to accuse anyone of anything, I guess I failed on that account. But I am open to suggestions, if you have other wording I could have used that would have stated my opinion without sounding like an accusation, which apparently it did even tho I have no idea how. If you have another recommended way of phrasing it, I would like to learn a new social nuance. Dana Quote Link to comment Share on other sites More sharing options...
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