Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Bruce... when I had the echo, I remember something went up from the left groin area. I hope there is not this added concern. You said, "if any sign of PH then a catheter..." what is this catheter??? I'm glad you are being monitored so often! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher> > >> > >> > > Hey Ladybug, How is it going ?? I do hope you are having good> > days. I think of you and just know you are hurting is upsetting.> > > Keep us posted.> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > >> > > "I believe that friends are quiet angels who lift us to our> > feet,> > > when our wings have trouble remembering how to fly."> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Sher A right heart catheter is the running of a wire into your heart, either through your neck or your groin to determine the pulmonary pressure. This pressure is estimated through regular echocardiograms but the only accurate measurement is through the catheter. It's an easy procedure but is normally performed in a hospital setting. > > > > > > > > I feel better too. I'm going to call in the morning and see if > > there > > > is an email I can use to his nurse. I have many questions I did > not > > > ask...after we were gone is when I thought of them, of course. > > > > He asked me to come back in three months, regardless of the > > results of > > > the tests. He asked me if the 2 hour trip would bother me. Too see > > him > > > again? I would drive twice that far. > > > > I'm feeling confident that his overlooking my care will bring > > results > > > or at least attention to my needs. > > > > MamaSher; 71, IPF 3-2006, OR. > > > > Don't fret about tomorrow, God is already there! > > > > Sher > > > > > > > > > > > > Hey Ladybug, How is it going ?? I do hope you are having good > > > days. I think of you and just know you are hurting is upsetting. > > > > Keep us posted. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Love & Prayers, Peggy > > > > Florida, IPF/UIP 2004 > > > > > > > > > > > > " I believe that friends are quiet angels who lift us to our > > > feet, > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 sher the echo that i get is in ultrasound where they put that "jelly" on you and rub it with a rolling device when i had the heart catheter, they put something up my groin -- probably a wire Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: Sher>>BruceTo: Breathe-Support Date: Monday, October 19, 2009, 4:13 PM Bruce... when I had the echo, I remember something went up from the left groin area. I hope there is not this added concern. You said, "if any sign of PH then a catheter..." what is this catheter??? I'm glad you are being monitored so often! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher> > >> > >> > > Hey Ladybug, How is it going ?? I do hope you are having good> > days. I think of you and just know you are hurting is upsetting.> > > Keep us posted.> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > >> > > "I believe that friends are quiet angels who lift us to our> > feet,> > > when our wings have trouble remembering how to fly."> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 MB... apparently I have had both. I remember the wire through the groin and I remember the thingy on my chest. Then, the dr said I had nothing wrong with my heart. No, Raghu did no procedures. I will go back in 3 months and in the meantime the tests will be ordered by him and done here where I live. What is a concern to him are the symptoms I have from SOB to the edema, and chronic fatigue and so on. If SOB is caused from PH too, what do I do when I am so SOB but apparently don't need O2? I had that this morning...hard to breathe and I did use my o2. I'm sure glad we have you, Bruce and others to clarify tests and answer questions! I'm in a new learning curve right now.... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher> > >> > >> > > Hey Ladybug, How is it going ?? I do hope you are having good> > days. I think of you and just know you are hurting is upsetting.> > > Keep us posted.> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > >> > > "I believe that friends are quiet angels who lift us to our> > feet,> > > when our wings have trouble remembering how to fly."> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Sher There are many other things that can cause shortness of breath, some of which are not at all related to PF, some of them minor and some more major. You indicate your sats are ok, but are they lower than your norms? My sinuses will cause additional shortness of breath for me and sometimes my sats will still be above 90 but they will be lower than normal doing the same thing. One thing too is lack of exercise and conditioning and I know that your other issues, such as pain, make that difficult. You said apparently don't need O2. What were your sats when you were short of breath this morning? > > > > > > > > I feel better too. I'm going to call in the morning and see if > > there > > > is an email I can use to his nurse. I have many questions I did > not > > > ask...after we were gone is when I thought of them, of course. > > > > He asked me to come back in three months, regardless of the > > results of > > > the tests. He asked me if the 2 hour trip would bother me. Too see > > him > > > again? I would drive twice that far. > > > > I'm feeling confident that his overlooking my care will bring > > results > > > or at least attention to my needs. > > > > MamaSher; 71, IPF 3-2006, OR. > > > > Don't fret about tomorrow, God is already there! > > > > Sher > > > > > > > > > > > > Hey Ladybug, How is it going ?? I do hope you are having good > > > days. I think of you and just know you are hurting is upsetting. > > > > Keep us posted. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Love & Prayers, Peggy > > > > Florida, IPF/UIP 2004 > > > > > > > > > > > > " I believe that friends are quiet angels who lift us to our > > > feet, > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 sats this am were about 90 - 95 MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher> > > >> > > >> > > > Hey Ladybug, How is it going ?? I do hope you arehaving good> > > days. I think of you and just know you are hurtingis upsetting.> > > > Keep us posted.> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > Love & Prayers, Peggy> > > > Florida, IPF/UIP 2004> > > >> > > >> > > > "I believe that friends are quiet angels who liftus to our> > > feet,> > > > when our wings have trouble remembering how tofly."> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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