Update on

February 23, 2005

For those of you who missed my prior posts on (age 6), I

can give you some more current information since we just got back

from a visit to her doctor and he continues to feel she is

progressing nicely after discontinuing growth hormone a bit more

than a year ago. grew 6 inches in the past year to 45

inches and 43 lbs.

When we discovered had RSS at age two with normal GH

levels, we floundered around with a variety of approaches but this

by far has been the most successful and least invasive. The

hypoglycemic episodes, periodic seizures, hyperactivity that pushed

her to the point of exhaustion, difficulty concentrating, reflux and

other gut related issues are now behind us.

Hopefully my truncated post did not bend anyone's ear to far this

time.

Beth

March 4, 2005

Ken,

Congrats !!! keep up the growing.

Home work is another story na is in Preschool and I can't get her to hold a

crayon to write a letter yet. When you figure that one out let me know so I

will have a plan of attack when the time comes.

Marcy na's mom

kmerrith wrote:

Hi everyone,

Just wanted to share a littel good news.

Yesterday we had an appointment with his pediatric endocrinologist in

Boston. Since his last visit in November, he has gained 2.7 pounds

(1.22 Kg) and grew almost 1.5 inches(3.8 cm). For the fist time, this

puts him just over the 5th percentile on a normal growth chart.

Also, it is clear that his growth is acclerating. At his next visit,

if he continues at this rate, the doctor may need to increase his

growth hormone dosage.

Now if we can just get him to do his homework.

Ken M

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