Re: Bone age question

[Guest guest]

hi jodi,

it is good to hear from you. i am not sure if the bone age is necessary or not.

our childrens hospital has kept up on avs. a year ago it showed it at 2yrs 6mon

when he was 3, so his bone age has advanced two years. even though his body

hasn't. they are going to check it again in a year.

talk to ya later

amy

averys momma

Jodi Rollison wrote:

Hey all! I was just reading Amy's post and it hit me. I wonder if I

should be checking 's bone age? I think he had one done LONG

ago, but since we have only seen Dr. H twice now, once in NY and once

at the Convention, it hasn't come up. What do you all think? Is this

something I need to get done on him? He will be three years old on May

23. His Pulmonary Dr. is WONDERFUL, and has been very willing to talkk

with Dr. H, but hasn't been able to get through to her. But, I am sure

if I explained why he needsa to have it done, she would go for it and

order the test for me. Please let me know what you all think.

Thanks so much,

Jodi R.

---------------------------------

[Guest guest]

Liam gets his bone age done once a year....

[Guest guest]

hey jodi!!

i think it is suppose to be done atleast once a year (someone will

correct me if i am wrong) christopher just had one done in jan but

i dont know the results yet, we will find out when we see dr h on

may 2nd i am sure!!

jodie c

>

> Hey all! I was just reading Amy's post and it hit me. I wonder

if I

> should be checking 's bone age? I think he had one done

LONG

> ago, but since we have only seen Dr. H twice now, once in NY and

once

> at the Convention, it hasn't come up. What do you all think? Is

this

> something I need to get done on him? He will be three years old

on May

> 23. His Pulmonary Dr. is WONDERFUL, and has been very willing to

talkk

> with Dr. H, but hasn't been able to get through to her. But, I am

sure

> if I explained why he needsa to have it done, she would go for it

and

> order the test for me. Please let me know what you all think.

>

> Thanks so much,

> Jodi R.

>

[Guest guest]

Jodi,

It is usually done 1x year for the younger kids but not usually at all

until they are starting GH. Then you have it done right before you

start GH and annually on the anniversary of starting GH until

adrenarche when Dr H starts doing it a little more often.

For more info than that, you need to talk to someone with older kids

then mine.

Judith, Steve, (RSS) and (non RSS) 5 year old twins

[Guest guest]

hi jodi,

jacob has his done once a year has cence he was about 2

cara mom to jacob

Jodi Rollison wrote:

Hey all! I was just reading Amy's post and it hit me. I wonder if I

should be checking 's bone age? I think he had one done LONG

ago, but since we have only seen Dr. H twice now, once in NY and once

at the Convention, it hasn't come up. What do you all think? Is this

something I need to get done on him? He will be three years old on May

23. His Pulmonary Dr. is WONDERFUL, and has been very willing to talkk

with Dr. H, but hasn't been able to get through to her. But, I am sure

if I explained why he needsa to have it done, she would go for it and

order the test for me. Please let me know what you all think.

Thanks so much,

Jodi R.

---------------------------------

[Guest guest]

Jodi,

Yes, you definitely should be checking 's bone age. If you recall,

's course

has been muh like 's. has had a bone age done every year since

he was a

year old. He was iniitally very delayed, but at age 4, his bone age started

advancing.

Other things were happening to him at that point too, but we did not

" officially " know that

he had RSS then. I have " officially " in quotes, because I started doing

research on my own

at that time, & I did think he had RSS, but I couldn't get any doctors to

officially make the

diagnosis. So, at age 4, went into adrenarche (but again I did not know

what this

was), and stayed like that, progressing for several years. If he was going to a

doctor who

knew he had RSS, he would have been put on someothing to stop the progression of

adrenarche and started having his bone age done every 6 months. 's

" official "

diagnosis was not until he saw Dr. H for the first time in 7/2003. He was 9.75

years then,

& by that time there was nothing I could do to fix the advancement in his bone

age for all

those years. Now, he gets his bone age done every 6 months & is on an aromatase

inhibitor (Aromasin) to stop adrenarche as well as Lupron to stop puberty.

I think there was another mom on here who said bone ages did not need to be done

until

the child starts growth hormone. I disagree with that. 's bone age

started

advancing at age 4. At that point, it was only 8 months over his chronological

age. He

didn't start growth hormone until he was 7.5 years old. By that time, his bone

age had

advanced by about 2.5 years above his chronological age.

Bottom line - have a bone age done every year initially until advancement starts

('s started exceptionally early) ; then the bone age should be done every

6

months.

Kim C.

> Hey all! I was just reading Amy's post and it hit me. I wonder if I

> should be checking 's bone age? I think he had one done LONG

> ago, but since we have only seen Dr. H twice now, once in NY and once

> at the Convention, it hasn't come up. What do you all think? Is this

> something I need to get done on him? He will be three years old on May

> 23. His Pulmonary Dr. is WONDERFUL, and has been very willing to talkk

> with Dr. H, but hasn't been able to get through to her. But, I am sure

> if I explained why he needsa to have it done, she would go for it and

> order the test for me. Please let me know what you all think.

>

> Thanks so much,

> Jodi R.

>