Hypersensitivity Pneumonitis

[Guest guest]

Hi all,

I received this email from a board member. I thought his story was valuable and contained lessons worth learning for all of us. There are times when a cause for pulmonary fibrosis can't be identified easily and then there are times when the cause can be identified but it required persistance. Joyce Rudy is a good example of this.

This gentleman, Bruce is his name (same name, different member) tells a similar story. With his permission I'm sharing it with all of you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: mbmurtha@...Sent: Saturday, September 19, 2009 1:17:13 AMSubject: IPF HOT TUBS AND HP

I read your post about HOT TUB PROBLEMS and I would like to share something with you. I have 2 lung diseases, I first became sick with a lung disease called HYPERSENSITIVITY PNEUMONITIS (HP)from the oils where I worked as a Punch Press setup operator. The oil had been contaminated with a Parasitic Mold which I would breath in every day as I would spray the sheet metal with the oils from a plastic spray bottle and also from the spray from the 550 ton press coming together and forming the parts. After becoming sick with HP my lungs became scarred and continue to scar (PULMONARY FIBROSIS) from the inflammation and side affects of being exposed to the oils.

I have a feeling that if some of the people with IPF or unknown cause to their PF would look back at their live that maybe they may or may not figure out what caused their illness.. HP has changed my life because I can not be exposed to fumes,perfume,smoke,cologne,strong odors like in the shopping isles like laundry soap, bleach,car and truck exhaust.hot and cold extremes in the weather or I am sick for hours and even days and every exposure only causes more lung scarring. HP can come from INDOOR POOLS ,HOT TUBS, MOLDY HAY, BIRDS AND JUST MOLD IN THE ROOF OR STRUCTURE OF YOUR HOME OR WORK PLACE. HP is know as pigeon breeds disease,mushroom works lung, farmers lung as well as work related lung problems from METAL WORKING FLUIDS. I have been fighting this disease since 2003 and also work comp since May 2005 but we have won our case in court as well as the appeal that my work place filed but we

are still waiting for another court date to get help with oxygen supplies,meds and my loss of earnings for what is left of my life, I hope that you take the time to find out what exactly is wrong or may have caused your illness because knowing will help you to avoid the problems and maybe save some of your lungs. I read these posts all of the time I am kind of a back seat driver that watches what goes by but never chime in but I thought that If I can save or help just one person from the life that I have to live like the boy in the glass bubble that maybe that was GODS plans for me to get this disease to begin with because I can not figure out why I would get a disease that has taken almost everything that I enjoyed in life away from me. I am car CRAZY but car exhaust and fumes kill me , I use to ride my TREK BIKE 100 TO 150 MILES ON Saturdays

or just on my day off but now just going up the stairs to go to bed kills me. I use to love to go to car shows and drag races but the tire smoke kills me. I hope that you can help out by checking into HYPERSENSITIVITY PNEUMONITIS and help spread the word the maybe we can find out what caused some of these unknown causes of IPF.

THANKS FOR YOUR TIME AND GOD BLESS