Re: Tube feeding

[Guest guest]

Hi Kim,

We also use the zevex enteralite. We have never used the prefilled

packages as just doesn't get that much formula (even

overnight).

As for the dose done beep, 's pump has NEVER beeped at dose

done. For us, that is perfect since he is mainly on the pump

overnight and we wouldn't want the pump to beep when it is done,

just stop. His pump is supposed to stop at 6:30 am and he doesn't

need to get up until 7:30.

We have occasionally had beeping problems, but since he really

doesn't use a backpack anymore they have stopped. Also, we clean

the sensors with rubbin alcohol.

Good luck,

Judith, Steve, jason (RSS)and (non RSS) almost 5 year old

twins

[Guest guest]

hi Kim

We have never used pre filled bags, although I have seen them used

in hospitals.

Liam has a set dose overnight and I have never wondered at whether

the entralite does deliver the correct dose, its something I might

check tonight though, and I will get back to you. i have heard it

said that if the line has been used a few times it stretches and

wont give the correct dose.

Good luck

Jody(mum to Liam 3.5yrs RSS and cameron)

>

> Has anyone ever used prefilled packages of formula in conjunction

with a feeding pump in

> lieu of cans & feeding bags? I looked online & saw that they make

1000ml & 1500ml

> prefilled bags (look like IV bags) with the formula uses.

They claim the benefits

> of using these are: less waste, longer hang time (48 hours), no

spillage (no cans to open &

> pour), 86% less preparation time, fewer feeding bag changes, non-

air dependent design

> assuring uninterrupted flow, low risk of contamination as compared

to cans or powder. A

> big plus for us would be the no spillage factor. Even when I am

sure nothing has spilled,

> still has formula droplets, stains, puddles, etc. in his

backpack (not too attractive

> to wear a backpack with stains all over it). I have never heard

of these until recently, and

> my son has been tube fed for 11 years! I only wonder whether it

would to be heavy for

> him to carry in a backpack, as he is now on continuous feedings

during the day too. It

> looks like the cost for these are about the same as the cans. I

was also thinking these

> would be easier to pack when we went on trips. The formula cans

take up a lot of room in

> suitcases! I would love to hear from anyone who has had

experience using these (the pros

> & the cons).

>

> On another note, we have just started using the Zevex Enteralite,

and we are having a few

> problems. First, the pump is not delivering the doses

accurately. It will beep & say that

> the dose is done, yet there will be formula left in the bag

(sometimes more than half!).

> Yesterday, never got a break from his feeding pump due to

this (he had to wear it

> all day to ensure he got the proper dose). Also, it will say dose

done without beeping. Is

> it possible that it only beeps for a certain amount of time & then

silences itself? The pump

> has alarmed several times at school saying no flow in or out, and

school staff (including

> the nurse) are unable to figure out what the problem is. I think

this pump is a good

> solution for him (hoping), but we are still trying to iron out the

kinks. Any advice would

> be appreciated!

>

> Kim C.

[Guest guest]

Kim-

I don't know about the prefilled bags but they sound great! About

the pump beeping. You can program it to beep when the dose is done

or not to beep. Call Zevex and they will tell you how...super easy.

I used to know how. I just tried w/ our pump and can't remember.

About not getting the proper dosage, I would also call them about

that. I have a GREAT contact at Zevex as we've had many problems and

have gotten about 4 new pumps in the past year. If you have problems

getting through let me know at jenyfer (AT) teamlapish (DOT) com and I'll give

you his name & direct number.

Hope this helps-

Team Lapish

Jenyfer, Dan, Tully, Pippin (RSS) & Ryker