Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 Thank you to all who replied with my question regarding secretin. I am quite confused on what to do for my son and would love some advice from those more experienced than myself. My son is 21 months old and first diagnosed PDD at age 19 months, and then autistic about 3 weeks ago. He attends an ABA based program 6 hours a week and will be going full time in about a month. He is doing wonderfully there and learning so much. We went gfcf about 2 and half months ago, he is seeing a DAN Dr. in Long Island. The doc has done the allergy testing and also recommended that he take Nuthera, TMG, Cod Liver oil, Magnesium, and a couple other vitamins and minerals. Should all of these things be started at once? What can I expect to see from this? He also set up an appointment for to have his first dose of secretin next month. I am very nervous about this. From what I have read, its very unclear. Seems that there is not a whole lot of research, and that only some kids benefit from it, and the thing that gets me the most is that IF any positve affects are seen, they only last 4-6 weeks?? What is the point of doing this and spending 500.00 per injection for something that only lasts a month??? I have not read anything about lasting affects, when the secretin leaves the body thats it until there is more? Please correct me if I am wrong. Does anyone know of any child who received secretin several years ago...were there any side effects, or any positve things that lasted?? I do intend to call the doc and discuss all this. It was very hard at the appt because my son was screaming due to all the allergy testing needles and it was too long of a day to sit there and ask all these questions. I guess what I would like to know is what I should do for my son. I want the best for him and will do anything to help him, including paying 500.00 a month for secretin for the rest of his life if it would help. I just dont know what to do and I am confused. Also, this chelation that I hear so much about...my son had blood tests for the metals and all came back normal and he has never had the MMR, does this mean he is not a candidate for the chelation? Any information on any of these subjects is greatly appreciated. Thanks so much. Toby in NY, Mom to 21 months _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 First of all, start supplements one at a time and wait to see how your child does with each one. Sometimes kids react to supplements. if you do all at once you wont know which one he is reacting to. Wait about a week between starting each one. Secondly, get more info before doing secretin. It does not help all kids. Does he have the symptoms that are helped by secretin? Thirdly, blood tests do not show mercury poisoning. Mercury moves into the organs, including the brain after awhile so a urine test called a challenge using DMSA is needed. If your DAN dr doesnt know this you need to find another dr. Go to www.autism.com/ari for lots of info. karen Quote Link to comment Share on other sites More sharing options...
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