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, I got my packet from UWMC. My appointment seems to be with Dr. Raghu. I have to be there 20 minutes early so that will be 8:40. I can't seem to get well since I was in the hospital. I am still really itred and sleepy all of the time. I don't even feel like putting in earrings anymore. I hope I get better soon. I just feel like I can't cope with it much longer.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho Come to think of it, when I was in ICU because of my biopsy, a friend called the nurses station and the nurse told her my diagnoses was "End Stage" pulmonary Fibrosis.... .Maybe the end stage is the fibrosis? Fibrosis being the end stage of ILD. Joyce Rudy AZ birds Re: Definition Bruce, Dyanne and Bob, Yes I will be totally outraged if I die of something

other than my lungs playing out. All the basis are covered as far as I know. The treadmill gets exercised daily, and I am known now as Uncle Nut or Nut Man, hopefully because I love raw nuts and fruits. Tyty Nursery will be sending 10 trees here, 6 of which are pecan trees. This should have happened 4 years ago, and now that I am as old as I have ever been, who knows if the pecan trees will bare before I cross the bar. When I read "end-stage" on my biopsy report, who would have imagined that I would be writing this 4 years out. Only my

pulmo in New Orleans offered any sign of hope. My other 2 pulmonologists could have used the term "terminal" and not had any greater effect than end-stage. I should have stopped to thank my first two pulmos for being politically correct. Just didn't think of it.Jerry/Mississippi/ 54/IPF/dx April 05 > > > >> > > > Anyone know how the term end-stage is typically used in relation> to> > > this> > > > disease? As in "There is excessive end-stage lung disease." Is> this> > > just a> > > > common modifier used in any diagnosis of Pulmonary Fibrosis? It's> > > certainly> > > > not a nice term to see in your report..> > > >> > > >> > > >> > > > Bob Dopher IPF 04/07> > > >> > >>

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