Re: Re: NEWBIE SCDGFCF HELP Please...

[Guest guest]

n, it's hard to say whether it was the casein or lactose that he had the sensitivity too because I eliminated both gluten & casein @ the same time & he just got better with time & then the removal of soy. Is there anyway to know or check before hand which one? The thing I've learned with casein is that it's the protein he can't digest, because he's not allergic to it on the ige or igg test.Thanks so much!Sent from my iPhone

Have you looked at pecanbread.com. It is a SCD site for kids with ASD and it is dairy free to avoid any problems with casein. They have a yahoo group too.

PJ

>

> > Hello to all... reaching out cuz I need a little help here....

> >

> > my son (3 1/2 with autism) has been GFCFsoy free corn free with low-no

> > sugar & starch for over a year, we have had a great deal of progresswith

> > gains in speech & behaviors, bowels are still not functioninggood with

> > direeha (<~~spelling?) and constipation alternating. Andunfourtunately

> > we are still with the never ending battle with yeast :-(

> >

> > Anyway I want to try SCD properly with the intro diet & then proceed to

> > the phases as stated in the BTVC book & on the site. However I am quite

> > nervous about the milk products since we have been casein/lactose free

> > for over a year and am terrified of going backwards and loosing all the

> > progress we've made.

>

> Do you know if your son was reacting to casein or to lactose? It's much

> more common to react to lactose, but of course some people do react to

> both.

> If he had/has a lactose intolerance only, then introducing the SCD yogurt

> and later, aged cheese, shouldn't be a problem: the 24-hour fermenting

> process removes lactose from the yogurt, as does aging the cheese (like

> cheddar).

>

>

> Also honey is very scary cuz in the past that has

> > feeded yeast for my little guy big time!!!! He is so sensitive to any

> > kind of sugar, even fruit. Can anyone tell me what they're experaincehas

> > been with thier child who has a casein sensitivity & big yeastproblems

> > both clostridia & candida and how SCD has either helped them ormade them

> > worse??? I need feedback either way here.

> >

> > Thankyou big time in advanced,

>

>

> He certainly doesn't have to eat honey, though the diet is obviously

> easier if he can tolerate honey.

> Even though he's so young I would strongly suggest that you look at

> getting him on LDN (low-dose naltrexone) at the appropriate does for his

> weight. It may well do wonders for him, as it forces the body to produce

> more endorphins, which then begin to regulate the immune system. That's

> why it works so well for things like Crohn's (which I have), but also for

> asthma, joint issues AND allergies (all of which I also have). And it has

> no nasty side effects as most drugs do.

>

> I wish you -- and him -- well.

>

> n

>

>

>

> --

>

> ______________________________

>

> A funny, touching gift book for cat lovers. Signed copies, free shipping

> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the

> 10 Cats Who Caused My Addiction by n Van Til

> www.wordpowerpublishing.com

>

[Guest guest]

I'm going to reiterate what PJ said.Are you a member of pecanbread? They are the experts in preciselythese kind of questions. The people there have much more experience dealing with these questions than we do, since it is a listspecifically for kids with ASD and SCD. pecanbread.comn, it's hard to say whether it was the casein or lactose that he had the sensitivity too because I eliminated both gluten & casein @ the same time & he just got better with time & then the removal of soy. Is there anyway to know or check before hand which one? The thing I've learned with casein is that it's the protein he can't digest, because he's not allergic to it on the ige or igg test.Thanks so much!Sent from my iPhoneHave you looked at pecanbread.com. It is a SCD site for kids with ASD and it is dairy free to avoid any problems with casein. They have a yahoo group too.PJ> > > Hello to all... reaching out cuz I need a little help here....> >> > my son (3 1/2 with autism) has been GFCFsoy free corn free with low-no > > sugar & starch for over a year, we have had a great deal of progresswith > > gains in speech & behaviors, bowels are still not functioninggood with > > direeha (<~~spelling?) and constipation alternating. Andunfourtunately > > we are still with the never ending battle with yeast :-(> >> > Anyway I want to try SCD properly with the intro diet & then proceed to > > the phases as stated in the BTVC book & on the site. However I am quite > > nervous about the milk products since we have been casein/lactose free > > for over a year and am terrified of going backwards and loosing all the > > progress we've made.> > Do you know if your son was reacting to casein or to lactose? It's much > more common to react to lactose, but of course some people do react to > both.> If he had/has a lactose intolerance only, then introducing the SCD yogurt > and later, aged cheese, shouldn't be a problem: the 24-hour fermenting > process removes lactose from the yogurt, as does aging the cheese (like > cheddar).> > > Also honey is very scary cuz in the past that has> > feeded yeast for my little guy big time!!!! He is so sensitive to any > > kind of sugar, even fruit. Can anyone tell me what they're experaincehas > > been with thier child who has a casein sensitivity & big yeastproblems > > both clostridia & candida and how SCD has either helped them ormade them > > worse??? I need feedback either way here.> >> > Thankyou big time in advanced,> > > He certainly doesn't have to eat honey, though the diet is obviously > easier if he can tolerate honey.> Even though he's so young I would strongly suggest that you look at > getting him on LDN (low-dose naltrexone) at the appropriate does for his > weight. It may well do wonders for him, as it forces the body to produce > more endorphins, which then begin to regulate the immune system. That's > why it works so well for things like Crohn's (which I have), but also for > asthma, joint issues AND allergies (all of which I also have). And it has > no nasty side effects as most drugs do.> > I wish you -- and him -- well.> > n> > > > -- > > ______________________________> > A funny, touching gift book for cat lovers. Signed copies, free shipping > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > 10 Cats Who Caused My Addiction by n Van Til > www.wordpowerpublishing.com>

[Guest guest]

At 01:45 PM 3/31/2010, you wrote:

it's hard to say whether it was

the casein or lactose that he had the sensitivity too because I

eliminated both gluten & casein @ the same time & he just got

better with time & then the removal of soy. Is there anyway to know

or check before hand which one? The thing I've learned with casein is

that it's the protein he can't digest, because he's not allergic to it on

the ige or igg test.

,

You might find the parents at Pecanbread.Com really helpful -- because

hundreds of them have been right where you are -- scared witless of

adding in dairy again.

Generally, what is recommended in situations where a known issue occurs

is to start SCD dairy-free, and let the gut heal for a few months before

trying to add the yogurt. In addition, many people find that SCD 24 hour

yogurt made with goat's milk or sheep's milk becomes tolerable once the

gut heals.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle