Re: Re: Regarding my daughter Nanni

[Guest guest]

Thank you for your suggestions.

We live in Fremont, California (bay area). Can anyone know a good

endocrinologist who has experience with RSS children ?

Regards,

Sangeetha.

Brock wrote:

Sangeetha -

I agree that 99% of most western traditional specialists do not take

a " whole " viewpoint of the patient. I guess I can understand part

of that, in that if I go to a lung expert, I want someone who knows

EVERYTHING there is to know about lungs. And in order for the

specialist to know everything there is to know about lungs, they

can't also learn everything there is to know about other parts of

the body. Does that make sense?

Hence, you have physicians who have graduated from medical school,

and then they have gone on for additional years of school in

certain " specialities. " For example, gastrointerology. Or

endocrinology.

My problem with our RSS daughter is that as we have all learned, so

much of what our kids go through is interlinked. We need a doctor

who sees the ENTIRE child, one who can see how the endocrine and the

GI and the cognitive and the ENT and the orthopedics all fits

together; one that is open to both homeopathic meds and traditional

meds, when necessary.

It is probably impossible to find such a doctor. Almost every

endocrinologist I have ever met truly cares about " height/growth "

and if you ask about your RSS child's GI/weight issues, they tell

you to go to see a GI doctor.

That is one reason we love going to Dr. Harbison in NYC -- she is an

endo, but because she has about 130 RSS patients, she truly treats

the " whole " child. However, she doesn't know a ton about

homeopathic stuff -- although she is supportive of it in certain

situations, and she encouraged me to have Dr. Dumont come and speak

at the convention 2 years ago (head if GI at Loyola Children's

Hospital in Chicago and also is head of their Integrative Medicine

Dept).

You need to find a good endocrinologist who has experience with

other RSS children; you need to talk to him or her and ask what

his/her viewpoint is on caloric intake/GI issues and its effect on

height. If they say " nothing " , RUN AWAY.

Growth hormone treatment is for far more than just height. At the

MAGIC Foundation, we have all the studies on GHT and RSS/SGA kids,

and you can get copies free as a member. But I truly encourage you

to read everything. Do the research and then make your decision.

GHT is not for every child or every family.

Same with other medications. Some children's reflux is minor enough

to be managed with diet changes and/or homeopathic remedies. Other

children's reflux can only be controlled with prescriptive meds.

Some children can take in enough calories with volitional feeding.

Other children need a bit of help with an antihistamine that helps

increase their appetite so they can still eat volitionally. Still

other RSS/SGA children have brains that simply can't communicate to

their bodies to eat enough (and/or they have compounding GI issues)

and these kids need g-tubes.

So you can see that there is a wide range of children and

resolutions. Your daughter can absolutely benefit from homeopathic

remedies. She may also need some help from prescriptive

medications. I wish you the best as you begin your research. If

you want to find out some good endos that other RSS/SGA families

have seen in your geographic area, let us know and we'll try and get

you some names. (MAGIC has a database.)

Salem (, age 9, RSS)

>

> Dear All :

>

> I am new to this group, have posted once before but mostly read

> through all your messages.

>

> I have a daughter who is 2 yr 2 months now and is diagnosed RSS

child

> at around 8 months. Since then I have tried different alternative

> methods on her for her growth. For example : Chiropractic,

> homeopathy, Cranial Sacral therapy and still continuing. She is

about

> 19lbs and 31 inches now meeting all her milestones. She is not a

very

> good eater (like my other one), but able to manage her with good

> quantity. She likes to eat herself these days competing with her

> sister. She is generally a happy and healthy child.

>

> I have not given her any special medications or hormones or food

from

> her birth. I am very worried to give her anything other than

natural

> stuff. ( I am in a way very much against western medicine and

doctors

> since I believe they don't take a holistic approach).

>

> Her pediatrician is not very aggressive either. My husband thinks

> that we should take her to the specialist and give her growth

> hormones or anything they suggest. I am not sure what I am doing

is

> right for her. Very confused.

>

> Can anyone help me understand what are the benefits of taking my

> daughter to a specialist ? What can they do to her ? What are the

> side effects of anything they may try on her ?

>

> I know many of you moms might have gone through this. Please share

> your thoughts.

>

> Regards,

> Sangeetha.

> Mom of Aish 6yr (non RSS) and Nanni 2 yr (RSS).

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