Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Sher, thank you for making it alright. I've never heard of chicken and feathers before but it's an interesting thought. LOL I hope that you are feeling better soon. I have neuropathy in my feet and until I started taking Lyrica it was hard for me to walk. I hated that. I hope you get some relief on Monday.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho Come to think of it, when I was in ICU because of my biopsy, a friend called the nurses station and the nurse told her my diagnoses was "End Stage" pulmonary Fibrosis.... .Maybe the end stage is the fibrosis? Fibrosis being the end stage of ILD. Joyce Rudy AZ birds Re: Definition Bruce, Dyanne and Bob, Yes I will be totally outraged if I die of something other than my lungs playing out. All the basis are covered as far as I know. The treadmill gets exercised daily, and I am known now as Uncle Nut or Nut Man, hopefully because I love raw nuts and fruits. Tyty Nursery will be sending 10 trees here, 6 of which are pecan trees. This should have happened 4 years ago, and now that I am as old as I have ever been, who knows if the pecan trees will bare before I cross the bar. When I read "end-stage" on my biopsy report, who would have imagined that I would be writing this 4 years out. Only my pulmo in New Orleans offered any sign of hope. My other 2 pulmonologists could have used the term "terminal" and not had any greater effect than end-stage. I should have stopped to thank my first two pulmos for being politically correct. Just didn't think of it.Jerry/Mississippi/ 54/IPF/dx April 05 > > > >> > > > Anyone know how the term end-stage is typically used in relation> to> > > this> > > > disease? As in "There is excessive end-stage lung disease." Is> this> > > just a> > > > common modifier used in any diagnosis of Pulmonary Fibrosis? It's> > > certainly> > > > not a nice term to see in your report..> > > >> > > >> > > >> > > > Bob Dopher IPF 04/07> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 BJ... thanks for your good wishes. I'm lying pretty low until Mon. I so do not want something new to cope with! You know how I feel. Enjoy your weekend. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Re: Definition Bruce, Dyanne and Bob, Yes I will be totally outraged if I die of something other than my lungs playing out. All the basis are covered as far as I know. The treadmill gets exercised daily, and I am known now as Uncle Nut or Nut Man, hopefully because I love raw nuts and fruits. Tyty Nursery will be sending 10 trees here, 6 of which are pecan trees. This should have happened 4 years ago, and now that I am as old as I have ever been, who knows if the pecan trees will bare before I cross the bar. When I read "end-stage" on my biopsy report, who would have imagined that I would be writing this 4 years out. Only my pulmo in New Orleans offered any sign of hope. My other 2 pulmonologists could have used the term "terminal" and not had any greater effect than end-stage. I should have stopped to thank my first two pulmos for being politically correct. Just didn't think of it.Jerry/Mississippi/ 54/IPF/dx April 05 > > > >> > > > Anyone know how the term end-stage is typically used in relation> to> > > this> > > > disease? As in "There is excessive end-stage lung disease." Is> this> > > just a> > > > common modifier used in any diagnosis of Pulmonary Fibrosis? It's> > > certainly> > > > not a nice term to see in your report..> > > >> > > >> > > >> > > > Bob Dopher IPF 04/07> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.