It's not my RSS child, but I'm concerned!! Advice/Hints?

[Guest guest]

Hi,

From time to time I get emails or calls from people who are not the

main caretakers of an RSS child: grandparents, uncles, aunts, ex-

spouses, concerned friends, teachers, etc. They are sometimes

frustrated over what they perceive as a lack of attention to

diagnosis or treatment of an RSS child by the parent. If you think

you are--or were-- in that category, I'm looking for

hints/suggestions that you would offer to these folks. (EXAMPLES of

specific concerns: child never taken to a specialist, inattention to

feeding or calories, lack of compliance with GHT schedule, parent

seeming to be in denial, parent too depressed to help the child,

disagreements over treatment, parent not able to use internet, parent

wanting to 'wait and see' if child grows on his/her own, etc....).

How did you overcome obstacles to convincing a parent or caretaker

todeal with RSS? Without having Dr. Phil :-) on hand to help out,

what else would you suggest?

You can post here or write me privately: rss2katy@...

I'm going to collate your responses so that I can be ready to share

your insights with others who contact me in the future--I'll also

post in our files section on the lisserve website!

tHANKS,

kATY