Re: Re: Gagging Question -

January 18, 2005

Hey ,

What gets me even more peeved, is when you try to TELL physicians what the

child needs (from previous experience!), and they IGNORE YOU!

is severely hypo-g. He can drop as many as 30 BS points in 30

minutes off feeds, depending on his activity levels. We've had to discuss

this with several of B's specialists, and they generally blow us off. His

Urologist wanted us to place B on Pedialyte for several hours before

surgery, and when we told him that experience has shown it won't hold his

BS, he looked at us with total disbelief!

The last time he was in the hospital for vomiting (Nov), they put him on a

D5 IV instead of D10, claiming that it would work just fine. His BS was

taken every hour, and sat between 50s-60s for 24 hours with the Drs claiming

that there was no need to change his IV, that this was " normal " !! Even the

combination of Pedialyte and D5 wouldn't raise his BS, but the DRs weren't

worried. He didn't get back into " his " normal range until they added his

formula back into the mix!

You would think the Drs would have more respect for our experience, but they

don't.

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)

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