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Don't have a gallbladder anymore. I thought my pancreas was on the right side under the ribs...

Thanks Holly! DarleneIntestinal Dysbiosis/CFSSCD 9 weeks

To: BTVC-SCD Sent: Sun, April 25, 2010 4:06:00 PMSubject: Re: Pancreas?

I can't help much, except to say that your liver (and gallbladder) are located on the right side under the ribs. Do you still have a gallbladder?Hope you're feeling better today!HollyCrohn'sSCD 12/01/08>> I had a very difficult time last night. I developed a lot of pain under the ribs on the right side. Eventually my whole right side was in pain. I couldn't sleep on my back, nor on my left side. Eventually I settled on my left side and just endured it. I hardly slept. This is new pain. I'm wondering if it's my pancreas. Could it be die-off? I'm at nine weeks on SCD. I know Elaine says that in the 2 to 3 month period a person can go through significant die-off.> > I have been taking Kirkman's

acidophilus and just recently started adding in their S. Boulardii. > > I just had the results come back from blood work, abdominal x-ray and ultrasound that showed everything normal. The doctor told me everything was good and there was absolutely nothing to worry about. He's just a GP so he's not going to look beyond the routine methods, the standard route. > > A GI panel I had done last year by a natural practioner showed that I had extremely low pancreatic enzyme output. So I'm wondering if this is a good sign of die-off, my pancreas starting to come alive, or a bad sign since this is a new thing. > > Also I'm taking Restoralax every night to help me go and I've been very regular but this morning - nothing. And I feel slight nausea. If anyone has any insight as to what is happening, I'd greatly appreciate it!> > Darlene> SCD 9 weeks> Intestinal Dysbiosis

(undiagnosed)>

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Boy, pardon me! I am really out of it today. I meant to say the pain is on the left side. Left side and middle. I had quite a bit of pain in my back during the night so it felt like it was pressing in both front and back. I've eaten very little all day, extremely exhausted, bad headache. Bowel started moving later in the day. DarleneIntestinal Dysbiosis/CFSSCD 9 weeks

To: BTVC-SCD Sent: Sun, April 25, 2010 5:58:38 PMSubject: Re: Pancreas?

I think the pancreas is mainly in the middle and left side, with just a tiny bit on the right side. It lies behind the stomach. Do you have any pain in your back, or is it all in the front part of the abdomen?HollyCrohn'sSCD 12/01/08>> Don't have a gallbladder anymore. I thought my pancreas was on the right side under the ribs...> > Thanks Holly!>  Darlene> Intestinal Dysbiosis/CFS> SCD 9 weeks

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Darlene

The

pancreas spreads behind the stomach and duodenum, so it can trigger symptoms in

the left and right upper abdominal. The biliary tree is right upper

quadrant. Pancreatic pain, or problems with the pancreatic duct can be

felt further to the right, in the center, and to the left of center [grin].

I

know I sound like a broken record, but your pain and nausea sounds so much like

what I experience having Sphincter of Oddi dysfunction. When my Sphincter

of Oddi is flaring I can’t lie on my left side, can’t lie on my

right for very long, so end up on my back but still have pain and nausea.

Some folks with Sphincter of Oddi dysfunction deal more with pancreatic issues,

others with biliary issues.

I

don’t have a gallbladder any more either.

Here’s

a helpful illustration of the upper GI. http://www.hopkins-gi.org/ Click on

Diseases and Conditions, then select the chronic pancreatitis condition for the

illustration.

You

might have developed some functional issues with your upper GI. It

happens with 10% to 12% of patients who have their gallbladders removed.

Sometimes a sphincterotomy is required to relieve the pressure, but food

choices help the most in keeping symptoms minimal.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>>>

Don't

have a gallbladder anymore. I thought my pancreas was on the right side

under the ribs...

Thanks Holly!

Darlene

Intestinal Dysbiosis/CFS

SCD 9 weeks

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Amazing how much better I feel today. I agree with Kim in her suggestion to you that it may have been a sludge back up. I very often have that pain just in the middle under the ribs and pressing into my upper back. I slept well and I don't feel that pain this morning. I am so glad you are doing better. I believe I am detoxing so much and that sometimes the body can't keep up and there is a back up in the system. I have not been taking my enzymes or my HCL and I think I will start adding that back in. Also prepared my stool samples to send away today for a GI tract analysis. DarleneIntestinal Dysbiosis/CFSSCD 9 weeks

To: BTVC-SCD Sent: Mon, April 26, 2010 12:31:26 AMSubject: Re: Pancreas?

That sounds a lot like the pain I had a couple weeks ago! Mine was just in the middle though, right under the ribs, with the worst pain being in the back. I also think it could have been pancreas, and Kim suggested it might have to do with the billiary tree as well (perhaps a sludge back up). I've been okay since then, and have gradually added back more foods (and fats). The only things I haven't added back are my multi-vitamin, fruit and veggies, and butter. Also, I've taken enzymes every night with my meat meal (I've been eating just meat and cheese for dinner the last couple weeks). Still waiting to here back from my GI.Hopefully tomorrow will be a better day :-)HollyCrohn'sSCD 12/01/08> >> > Don't have a gallbladder anymore. I thought my pancreas was on the right side under the ribs...> > > > Thanks Holly!> >  Darlene> > Intestinal Dysbiosis/CFS> > SCD 9 weeks>

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Is Digest Gold an enzyme? Has it helped you? DarleneIntestinal Dysbiosis/CFSSCD 9 weeks

To: BTVC-SCD Sent: Mon, April 26, 2010 7:35:30 AMSubject: Re: Pancreas?

my pancreas pain is left and pretty high - pancreas looked ok on tests though and enzymes were elevated once but went back down - doc did say to go back on digest gold - maybe that will help you too???eileen 2 years 3 months scd

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Not

all patients with Sphincter of Oddi dysfunction have severe nausea issues, but

we all deal with abdominal pain and back pain. I’m “lucky”

enough to have these symptoms but, unlike others, haven’t yet had to deal

with pancreatitis. But I get nausea from other causes as well, like

turning my head a certain way, or when my knee or spinal pain goes severe for a

few minutes. And I have gastroparesis (failed my GES test) which is

another source of nausea. Kind of a triple whammy [grin].

But

yes, the pain is often the kind that can make it hard to breathe, and you are

flat on your back (doubling over makes the pain worse [grin]) trying to endure

it. There is a unique pressure and muscle twitching that accompanies the

Sphincter of Oddi spasms, and I’ve learned to differentiate between that

problem and when my common bile duct is acting up.

Sounds

grim, but thanks to SCD I can keep the symptoms minimal most of the time, and

just deal with a more severe flare-up a few times a year. Food choices

make a big difference to my digestion functionality.

Hopefully

you aren’t dealing with Sphincter of Oddi dysfunction, but are dealing

with a bile duct issue that might resolve on its own.

From

what I’ve heard from chronic pancreatitis sufferers, and the few I’ve

seen in the hospital when I’m visiting my gastroenterologist for tests

and procedures, the symptoms are severe. The pain is extreme, or so I’m

told. And I can believe it. You definitely know you are dealing

with a faulty pancreas.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>>>>>>>

I

appreciate your input! I've looked up the Sphincter of Oddi and I just don't

have the nausea problem to the degree that it sounds like you have. I

occasionally have nausea when I'm feeling especially rotten. Yesterday, a trace

of nausea. But S of O sounds like nausea is much more prominent and

more frequent. I'm hoping I don't have it anyways! :)

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