Re: Sleeping remedies anyone?

[Guest guest]

Mike, I have the Prednisone

sleeplessness too.

I found that if I do not take my Lunesta ( Ambien didn't work at all)

for two days then it works again for about a month. Then I have another

"Drug

Holiday" and start over again

..I do loads of computer games for two straight nights!!!

I even get laundry done!

Sorry...no real remedies...sometimes a really bad movie works!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

mike_dulin wrote:

Hi,

Since taking the Prednisolone (I'm also using Cellcept) sleeping is a

problem. I've been taking Ambien since August, at first that did the

job, but not anymore.

What are other people doing about this problem?

Thanks,

Mike Dulin

[Guest guest]

Mike:

I'm on 40mg prednisone, no Cellcept. I take 200mg of Trazadone to sleep. Prior to the prednisone, I took 75-100mg of Trazadone, but it wasn't enough. Talk to your doctor.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

To: Breathe-Support Sent: Fri, October 23, 2009 11:58:05 AMSubject: Sleeping remedies anyone?

Hi,Since taking the Prednisolone (I'm also using Cellcept) sleeping is a problem. I've been taking Ambien since August, at first that did the job, but not anymore.What are other people doing about this problem?Thanks,Mike Dulin

[Guest guest]

Mike, Ask your doctor for Lunesta. I had been on Ambien before my transplant

due to my back problems making it hard for me to sleep. Right after the

transplant when I was on such high doses of Prednisone, CellCept and Prograff I

could not sleep. I am only on 250 mg of CellCept twice a day now, 5 mg of

Prednisone and 3 mg of Rapamune to replace the Prograf. Still if I get too much

caffine in a day even the Lunesta doesn't help. In particular I drank 2 glasses

of ice tea the other day at lunch time; and it took me a longer time to get to

sleep. I drink coffee every morning, but make it with half regular and half

decaf; and I don't drink soda with caffine very often, definitely not in the

evening. I also take one Zanaflex (muscle relaxer) at bedtime; and now I get 8

to 9 hours of sleep even though I may wake up 2 or 3 times during the night -

mostly due to my back problems. I also read when I get in bed to help get me

drowsy.

Good Luck.

Judy (Ohio) IPF 11/06 TX 8/07

>

> Hi,

>

> Since taking the Prednisolone (I'm also using Cellcept) sleeping is a problem.

I've been taking Ambien since August, at first that did the job, but not

anymore.

>

> What are other people doing about this problem?

>

> Thanks,

> Mike Dulin

>

[Guest guest]

Joyce, My doctor told me to not take naps during the day; and I didn't even do

it back right after the transplant when I slept very little at night. Going to

the YMCA to work out in the senior swimming pool has helped me not only made me

stronger but tires me out enough to sleep better. In fact I started to fall

asleep siting in my chair watching TV around 9:30 last eve, so went to bed and

read.

Then I slept.

Judy (OH) IPF 11/06 TX 8/07

>

>

>

> Subject: Sleeping remedies anyone?

> To: Breathe-Support

> Date: Friday, October 23, 2009, 11:58 AM

>

>

>  

>

>

>

> Hi,

>

> Since taking the Prednisolone (I'm also using Cellcept) sleeping is a problem.

I've been taking Ambien since August, at first that did the job, but not

anymore.

>

> What are other people doing about this problem?

>

> Thanks,

> Mike Dulin

>

[Guest guest]

So Mike have you even been tested for sleep apnea? Do you wake up with a

headache, snore, have a sore throat, or find yourself jerking awake?

I also take Ambine and Prednisone and was experiencing the same

problem with diminishing results. I have a CPAP now and I sleep more easily and

deeply. If I am wired up at bedtime I take an Ativan to ease me into a more

calm state.

Do I feel like a junkie? You betcha. I can live with that as long as I can

sleep. Sometimes I get all wild and crazy if am having RA pain or some of the

other fun things I have, I throw in a muscle relaxer.

And I have a really rigid routine at night so my body knows what it is supposed

to do.

Good luck with whatever you decide to do. Sleeping is a major problem and

should be addressed like any other physical problem.

s, Lubbock, TX

NSIP w/PF 12/2006 et al

>

> Hi,

>

> Since taking the Prednisolone (I'm also using Cellcept) sleeping is a problem.

I've been taking Ambien since August, at first that did the job, but not

anymore.

>

> What are other people doing about this problem?

>

> Thanks,

> Mike Dulin

>