sick and tired

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Thank you, , for making me feel like it is alright to not feel well. I have had fibromyalgia for over 20 years and I have always felt guilty for being tired and in pain so much. I've learned to manage that and now it is something else.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho Come to think of it, when I was in ICU because of my biopsy, a friend called the nurses station and the nurse told her my diagnoses was "End Stage" pulmonary Fibrosis.... .Maybe the end stage is the fibrosis? Fibrosis being the end stage of ILD. Joyce Rudy AZ birds Re: Definition Bruce, Dyanne and Bob, Yes I will be totally outraged if I die of something

other than my lungs playing out. All the basis are covered as far as I know. The treadmill gets exercised daily, and I am known now as Uncle Nut or Nut Man, hopefully because I love raw nuts and fruits. Tyty Nursery will be sending 10 trees here, 6 of which are pecan trees. This should have happened 4 years ago, and now that I am as old as I have ever been, who knows if the pecan trees will bare before I cross the bar. When I read "end-stage" on my biopsy report, who would have imagined that I would be writing this 4 years out. Only my

pulmo in New Orleans offered any sign of hope. My other 2 pulmonologists could have used the term "terminal" and not had any greater effect than end-stage. I should have stopped to thank my first two pulmos for being politically correct. Just didn't think of it.Jerry/Mississippi/ 54/IPF/dx April 05 > > > >> > > > Anyone know how the term end-stage is typically used in relation> to> > > this> > > > disease? As in "There is excessive end-stage lung disease." Is> this> > > just a> > > > common modifier used in any diagnosis of Pulmonary Fibrosis? It's> > > certainly> > > > not a nice term to see in your report..> > > >> > > >> > > >> > > > Bob Dopher IPF 04/07> > > >> > >>

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