Re: Re: mildly elavated IGF-I levels

[Guest guest]

jodi,

thank you for your kind words. you remind me that in the end no matter what i

have tried. i am guessing that i have a good doctor but idon't think he has

really delt with a child just like mine how i wish we could go to see dr.h or at

least have her guidence. my gi won't up his peractin and said he is grown onthe

normal curve for weight gain how can you tell if the med are work i so want to

tell him well yuo would really see they were working if you would move up the

doseage i wanted to say duuuuuu. iam hope jacob really know i do the best i can

maybe we will have more after the convention as always you and max a your word

do give me hope.

thanks cara mom to jacob

fretting over the inevperance of my doc and hoping to better educat them

Jodi Zwain wrote:

Oh, Cara, please tell not to fret! We worried so much about

Max and his lack of growth on gh. Dr. H. said he was gh resistant

and gave us little hope of his reaching our goal of 5'3 " . (Hers was

5'6 " ) I cried, I tried making deals with God, my husband and I

spoke long into the nights.... We were terrified that Max would

never be in the normal range for height and would be upset after all

he had endured to grow, digest food properly, and even to get his

psyche in a better place. Now I am so happy to say that he is 5'3 "

and it seems like it all happened overnight. We stuck with it and,

even though it's been tough, it has paid off.

Keep on doing what you are doing. Tell that there is always

hope. He is 8 years old and there is plenty of time for him to grow

and develop and be what he wants to be. I know it gets

discouraging, but he will get there. He is lucky to have you for a

mom. You are doing everything you can to help him. You, like us,

can never look back and say you did not try!

Hugs

Jodi Z

[Guest guest]

jody,

thanks i would like to hear what they have to say to you as well. i dod know

that with jacob his IGF-I were within the normal range befor he started so maybe

that make a difference

cara mom to jacob

Jody & Damian wrote:

Hi Cara

Liam has been on ght since November, he started with an elevated IGF-

1 and it has gone up since he has been on it.

We have been told not to worry about it, Im not saying Im not!!

We have some more tests next month, Ill let you know how it goes and

if i find out anything more about it.

Jody(mum to Liam 11kg 86cm and cameron)

> hi

> jacob has been on ght begining in dec 04 we then had a follow

up at the begin of april the doc was pleased to with his growth and

raised his dose was changed from 0.26 ml to 0.28 because he was ill

at the time we did not have the blood test done that day witch the

doctor said was fine just come back in about a months well we did

monday of last week. yesterday we got a letter from him saying his

IGF-I levels are mildly elevated. he started to stop this growth

hormone for one week and then to restart it at the first dose of

0.26ml and come back and test again in a month.

> has anyone else expreance this happening in there child. it

worries me.

> because jacob is 8 we tell him about all his teratment and such

so he understand why he takes these med and the shot and so i also

shared this letter with him so he understood why we were not giving

his shot.

> the poor kid looked like he was gonig to cry he said to me then

mommy i won't grow. i told him it would be ok.

> cara mom to jacob

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