Re: Dawn fron Newtown square

[Guest guest]

there is someone in Delaware - don't remember her name

and there is nne -- teddyspenguins in North Jersey

we try to meet at a restaurant near one of the highways -- like the pennsylvania turnpike, rt 1, or I-95

we need to pick a date and a location convient for all

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Dawn fron Newtown squareTo: Breathe-Support Date: Thursday, November 12, 2009, 8:58 PM

Dawn. You're a neighbor!!! I live in Blue Bell ( right outside Philly)Welcome to the group..there are several of us in PA! We just have to figurewhen and where to meet. Pink Joyce lives in Langhorne, Adrienne lives in Philly,Patti lives in Cherry Hill,Tom lives in Gilbertsville, and Bob lives somewhere on NEPA. I can't recall anyone else. I'm certain that there is a girl near Lancaster..just don't remember her name.Hey. all Pennsylvanians ...post please!!!! We need to have a meet and greet!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Dawn Urso wrote:

Thank you, each day I learn a little more, Dawn 43, Newtown Square, PAPF from radiation 07/2008

From: Sher Bauman <bofus6 (AT) verizon (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thu, November 12, 2009 5:35:22 PMSubject: Re: Re: Book



Dawn...whatever you did to send this post, it came through fine...and everyone can see it. If you want a special subject or question just put it in the 'subject' line.

If you want to respond to a post you just read, click on reply and you type in your response and send...

I personally like getting mail from the group in my personal 'Inbox. Others prefer reading and answering from the web page.

No silly questions here!

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: Book Jack,I wholeheartedly agree with you about the heart-wrenching posts, "told from the heart," that would make this book a huge success among the general public. That's why I wrote that most members could just cut & paste previous posts to tell their stories because they were already so good. But Barbara & Beth make a really good point. Just because you & I have been writing on demand our whole lives doesn't mean the general public feels comfortable doing it. I think you said you taught college students like I did. Maybe your students were already good writing majors, but many of mine weren't, so I totally understand how people can be intimidated by a writing project. That's why I think a Questionnaire is a great idea. For one thing, we'll get responses from a lot more people, which I know you're hoping to see. And who knows? Sometimes just having a question to

answer gets the juices flowing & stories come pouring out.So go for it, Barbara. I can't wait to see the Questionnaire. I think that's one thing that really can be posted on the Files section of our website, so everyone can download a copy. I would ask that you run it past a couple of us on the committee before you submit it though. Mostly because we might have an idea for another question to include & the read-only Files section can't easily be edited. For example, I think we should include a question asking permission to possibly use info from people's past postings with the caveat that they will have final approval over any edited version that's attributed to them. Whaddya ya'll think?Cees, S CalifPF 10/08> > > >> > > > Hi, I'm new here and need to hear from others who feel as old as I do.> > > I'm only 43 but my body is about 20 years older. I've battled Hodgkin's> > > Lymphoma 7x since 1995 and am still in the fight. Now I have PF, am on> > > oxygen 24/7, use a bi-pap and get out of breath with any movement. I am> > > in a rehab program 3x a week and was told I have a week diaphragm too> > > due to being laid up after some stomach surgery, so I am going to try> > > singing lessons to help me breath differently. I am so tired from> > > breathing, it takes so much energy. I am in a support

group for the> > > cancer and in private therapy for everything else. But when does your> > > quality of life take priority over trying> > > > endlessly to beat all these> > > health issues? I have a king of a husband and a huge loving support> > > system but none of that can help me breath any better. Sorry for> > > complaining so soon, it's just so tough and I know someone out there has> > > walked in my shoes, I just need to know how do you keep on walking???> > > >> > >> >>

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