Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 Dot... OMG, what horrible experiences to read about you! I've heard of others who had similar outcomes after surgery and it's one of the reasons I do not opt for surgery. I'm so grateful each of us can make our own decisions... and then we count on God... I hope you are having some small improvement at least, in how you feel. A gentle hug to you! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Darlene-vats Hi Darlene, On my 1st visit with pulmo dr-i was sent immediately to hosp for lung biopsy. He told me because of my age i would have no probs 1-3 days max & because of the severity of the scaring on lungs via xray that i needed to have one done to confirm. Well, even being 41 years young i had every complication possible-i'm sorry to say. After 1st lung biopsy-the two tubes that were used as drainage from lung never ceased from draining. I had constant air leak- & i developed an infection which caused pneumothorax-collaped lung of which i blew up to a 300 pd person-my face-eyes, neck, arms chest-blew up like a ballon & while in the hospital day 7-my family had to beg the nite nurses to call my dr to come & take care of this. He did & i was rushed to Surgery. So he had another look @ lung (2nd biopsy) all looked well, but i didnt feel well. I told dr i couldnt breathe & to please go back & fix me. So after i had continuous leak & again not able to remove the 2 tubes again i convinced him to do yet another surgery...day 14 of which is was the 3rd surgery. After 3 hours intensive search for a leak..he found one of the honeycomb thingie's on my lung to have an air leak. He sowed it, super glued gorilla glued it & seale it shut. 2 Days after that surgery..air leak stopped & by day 4 both tubes were FINALLY removed & i was released from hospital on day 19...$139,000 later...(not including anesteioligist/nor dr.s bills). I went home on a Friday---and on Sunday evening because i coughed S O hard i had yet another pneumothorax (collapsed lung)...went to my heart dr. got xray & went straight into hospital yet AGAIN. I began to blow up again. So went to hospital on a Monday this time they kept me awake..medicated area..had a hard time finding where to make a whole because by this time i already had 6 incisions-so he found 1 after about 15 chest rays-you know the one your whole body goes on..and they fixed me up. Thankfully i was released 6 days later. It was HARD for ME. I don't know why..even the dr.s said that i was 1 n a million. They said these complications only happen to elderly people like in their 90's but for whatever reason they couldn't explain why this would happen to me. All they could do was apologize. I really thought i was going to die. I was in so much pain that they had to medicate me with an epideral/pain patch's, morphine, vikadin, zanax, sleeping pills...you name it! I lost my appetite. I couldn't sleep. I had major anxiety. I'm sorry but it was not a good experience for me. I still wake up every morning & look at myself in the mirror to make sure that i'm not swelling like a balloon. The recovery was very long & hard, but again we're talking 4 surgeries in 26 days. No bra's at all...even to this day. My appetite came back..i was on vikadin, darvacet for several months after & that caused me alot of anxiety, but the pain was so sever i had no choice. Thankfully, i was able to wean myself off so that i could eat again & get some rest @ night. I do still have pain slight but i do & i use tylenol 3 w/codeine & it helps when i need it. I'm on o2 24/7 (now) 4-5 mobile 3-4 night. I take amitriptylin @ night to sleep/pain/anxiety. I do get out, but not as much as i did. Would i do it again? I'm not sure? When the dr told me he's putting on the Lung Transplant List..my 1st reaction was-are you kidding me? If a lung biopsy almost killed me, what makes you think that my body will endure a lung transplant. But in hearing other transplant recepients & wanting to live & not die...i am seriously considering it! Like the others have said..its up to you. When my dr told me i needed to get it done, i did it. But ultimately you know what you need & what your body can take. THE GOOD THAT DID COME OUT OF MY BIOPSY WAS THAT THEY WERE ABLE TO CONFIRM DIAGNOSIS-NO GUESSING & THAT I HAVE PF-UIP, 25% LUNG CAPSITY 12.5 ON EACH LUNG. AND MOST IMPORTANTLY-I SURVIVED IT!!! That has given me hope that i'm alot stronger than i thought i was & that i was able to endure the pain. and I AM STILL HERE! And finally i see that i am slowy but surely getting around a little more. Do i need help-yes. Thank God for my sister & mom. They do just about everything that i can't do for myself. Believe me i try! I try to do all i can, but i realize my limitations as well. I hope that this will help you make the best decision for you. i can only share what i've gone through...and what i've survived! God's best! Dot/42/uip10/08/San , Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 Thank you Mama Sher..i can always use a hug!Right back @ you! God bless u! Dot/42/uip/10-08/Sa,Tx Subject: Re: Darlene-vatsTo: Breathe-Support Date: Friday, September 25, 2009, 1:43 PM Dot... OMG, what horrible experiences to read about you! I've heard of others who had similar outcomes after surgery and it's one of the reasons I do not opt for surgery. I'm so grateful each of us can make our own decisions... and then we count on God... I hope you are having some small improvement at least, in how you feel. A gentle hug to you! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Darlene-vats Hi Darlene, On my 1st visit with pulmo dr-i was sent immediately to hosp for lung biopsy. He told me because of my age i would have no probs 1-3 days max & because of the severity of the scaring on lungs via xray that i needed to have one done to confirm. Well, even being 41 years young i had every complication possible-i'm sorry to say. After 1st lung biopsy-the two tubes that were used as drainage from lung never ceased from draining. I had constant air leak- & i developed an infection which caused pneumothorax- collaped lung of which i blew up to a 300 pd person-my face-eyes, neck, arms chest-blew up like a ballon & while in the hospital day 7-my family had to beg the nite nurses to call my dr to come & take care of this. He did & i was rushed to Surgery. So he had another look @ lung (2nd biopsy) all looked well, but i didnt feel well. I told dr i couldnt breathe & to please go back & fix me. So after i had continuous leak & again not able to remove the 2 tubes again i convinced him to do yet another surgery...day 14 of which is was the 3rd surgery. After 3 hours intensive search for a leak..he found one of the honeycomb thingie's on my lung to have an air leak. He sowed it, super glued gorilla glued it & seale it shut. 2 Days after that surgery..air leak stopped & by day 4 both tubes were FINALLY removed & i was released from hospital on day 19...$139,000 later...(not including anesteioligist/ nor dr.s bills). I went home on a Friday---and on Sunday evening because i coughed S O hard i had yet another pneumothorax (collapsed lung)...went to my heart dr. got xray & went straight into hospital yet AGAIN. I began to blow up again. So went to hospital on a Monday this time they kept me awake..medicated area..had a hard time finding where to make a whole because by this time i already had 6 incisions-so he found 1 after about 15 chest rays-you know the one your whole body goes on..and they fixed me up. Thankfully i was released 6 days later. It was HARD for ME. I don't know why..even the dr.s said that i was 1 n a million. They said these complications only happen to elderly people like in their 90's but for whatever reason they couldn't explain why this would happen to me. All they could do was apologize. I really thought i was going to die. I was in so much pain that they had to medicate me with an epideral/pain patch's, morphine, vikadin, zanax, sleeping pills...you name it! I lost my appetite. I couldn't sleep. I had major anxiety. I'm sorry but it was not a good experience for me. I still wake up every morning & look at myself in the mirror to make sure that i'm not swelling like a balloon. The recovery was very long & hard, but again we're talking 4 surgeries in 26 days. No bra's at all...even to this day. My appetite came back..i was on vikadin, darvacet for several months after & that caused me alot of anxiety, but the pain was so sever i had no choice. Thankfully, i was able to wean myself off so that i could eat again & get some rest @ night. I do still have pain slight but i do & i use tylenol 3 w/codeine & it helps when i need it. I'm on o2 24/7 (now) 4-5 mobile 3-4 night. I take amitriptylin @ night to sleep/pain/anxiety. I do get out, but not as much as i did. Would i do it again? I'm not sure? When the dr told me he's putting on the Lung Transplant List..my 1st reaction was-are you kidding me? If a lung biopsy almost killed me, what makes you think that my body will endure a lung transplant. But in hearing other transplant recepients & wanting to live & not die...i am seriously considering it! Like the others have said..its up to you. When my dr told me i needed to get it done, i did it. But ultimately you know what you need & what your body can take. THE GOOD THAT DID COME OUT OF MY BIOPSY WAS THAT THEY WERE ABLE TO CONFIRM DIAGNOSIS-NO GUESSING & THAT I HAVE PF-UIP, 25% LUNG CAPSITY 12.5 ON EACH LUNG. AND MOST IMPORTANTLY- I SURVIVED IT!!! That has given me hope that i'm alot stronger than i thought i was & that i was able to endure the pain. and I AM STILL HERE! And finally i see that i am slowy but surely getting around a little more. Do i need help-yes. Thank God for my sister & mom. They do just about everything that i can't do for myself. Believe me i try! I try to do all i can, but i realize my limitations as well. I hope that this will help you make the best decision for you. i can only share what i've gone through...and what i've survived! God's best! Dot/42/uip10/ 08/San , Tx Quote Link to comment Share on other sites More sharing options...
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