Re: New Online Support Group has been created (Leanne)

[Guest guest]

LeanneDo you think this would be appropriate for my son he just turned 17? He lives with me and in the last 3 years he had my DX and his Mom deciding it was too much and left and now were divorced. I know he is dealing with a lot of things. I just want to be careful about to much drama.

Thanks

Walt (52) on Whidbey IPF,Nsip.Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow

Subject: New Online Support Group has been createdTo: "Breathe Support Caregivers" <Breathe-SupportCare givers@yahoogrou ps.com>, "Breathe-Support Grief" <Breathe-SupportGrie f (AT) yahoogroups (DOT) com>, "Support" <breathe-support@ yahoogroups. com>Date: Thursday, September 24, 2009, 10:52 AM

Hello all,

Just wanted to let you know that a new Online support group has been created. This group is for children and young adults whose life has been affected by pulmonary fibroisis. We are asking to keep the age limit of the group to 25 and under. (my daughter) wanted to start this group because she felt she had no place to go to talk about what was going on inside her when I was diagnosed back in 2003. who is 22 will be the moderator.

Here's the link:

http://health. groups.yahoo. com/group/ Breathe-SupportF amily/

If you know of any children or young adults who you feel will benefit from this type of support group, please pass along the link.

Thank you.

Leanne Storch

Executive Director

Pulmonary Fibrosis Foundation

1332 N. Halsted, Suite 201

Chicago, IL 60642-2642

www.pulmonaryfibros is.org

P

F

A cure is just a breath away

[Guest guest]

Walt,

Your son is precisely the type of individual for which this group has been set up. The "Caregivers" board is typically not appropriate for our teens and even young adult children. I suspect though obviously can't guarantee that with moderating there won't be lots of drama. It will take a while to get the board going and attract membership but the intention is to have a place where our young adult family members have a place to go to for support and information that feels as safe for them as this does for us!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, September 25, 2009 3:09:12 PMSubject: Re: New Online Support Group has been created (Leanne)

LeanneDo you think this would be appropriate for my son he just turned 17? He lives with me and in the last 3 years he had my DX and his Mom deciding it was too much and left and now were divorced. I know he is dealing with a lot of things. I just want to be careful about to much drama.

Thanks

Walt (52) on Whidbey IPF,Nsip.Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow

Subject: New Online Support Group has been createdTo: "Breathe Support Caregivers" <Breathe-SupportCare givers@yahoogrou ps.com>, "Breathe-Support Grief" <Breathe-SupportGrie f (AT) yahoogroups (DOT) com>, "Support" <breathe-support@ yahoogroups. com>Date: Thursday, September 24, 2009, 10:52 AM

Hello all,

Just wanted to let you know that a new Online support group has been created. This group is for children and young adults whose life has been affected by pulmonary fibroisis. We are asking to keep the age limit of the group to 25 and under. (my daughter) wanted to start this group because she felt she had no place to go to talk about what was going on inside her when I was diagnosed back in 2003. who is 22 will be the moderator.

Here's the link:

http://health. groups.yahoo. com/group/ Breathe-SupportF amily/

If you know of any children or young adults who you feel will benefit from this type of support group, please pass along the link.

Thank you.

Leanne Storch

Executive Director

Pulmonary Fibrosis Foundation

1332 N. Halsted, Suite 201

Chicago, IL 60642-2642

www.pulmonaryfibros is.org

P

F

A cure is just a breath away