Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 Hello I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do. I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications. I guess I start with looking for a new Doc. I am tired of feeling like it’s always a hassle to get anywhere. Just venting Thanks for the understanding Ear Walt on Whidbey IPF,Nsip.Uip. 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 ditto bill the pulmonary who made the diagnosis said that there was nothing he could do for me and discharged me he also infomed me that both Penn and Temple have departments specializing in ILDs if i want to i could call them so i called Penn Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re:tiredTo: Breathe-Support Date: Wednesday, September 16, 2009, 8:12 AM You have to be aggressive. I can't believe some of these doctors. My first pulmonologist got the diagnosis of IPF, gave it to me, said it was "very advanced" and sat back in his chair and said basically nothing could be done. I would not qualify for a lung transplant, there was no pulmonary rehab available, nothing could be done. So I went home, read up on it, found out about pulmonary rehab, found out about drug trials to ask him about, found out more about transplants, went back and asked him about these things and he just wasn't interested in helping. And he's a senior doc, has fellowships, great credentials, the whole deal. So I changed pulmo dudes. Now I'm approved for a transplant, I've had pulmonary therapy and go to the gym 4 times a week, I'm taking NAC and some other things that might help, and I've lived a year longer already than the first guy thought I would! DO NOT HESITATE TO CHANGE DOCTORS!! Bill C. IPF 10/08 N.E. PA Quote Link to comment Share on other sites More sharing options...
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