Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 Oh Peggy... I just read this post. I'm so sorry to hear about your lungs. You must be feelin' crap--py! Wish I could come and bring hot tea or some darn thing that would taste good but probably wouldn't help a bit! I love you dear friend. I know you are taking care but don't don't put off calling Dr if you need too. You were telling BJ about 'large keys'...I'm wondering how large keys can fit in the same space as what is there now MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Re: Bruce I have flu in the right pneumonia in the left.. left is really sore at the site and swollen. I always react to them. I'll never have to have a pneumonia shot again. after 65 they say you don't need it but my Dr said she wanted me to have one. I would rather just do it and be done.. lol I'll be over this by tomorrow I'm sure. Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." PeggyI guess it may be because he just can't get you in, but my doctors wouldnot do the flu and pneumonia on the same day.>>> Hi everyone,> Just a quick word that there will not be any chat this evening. Peggy> is not feeling well and I am babysitting for my nieces. So next time> will be two weeks from today October 15th!>> Beth>> Moderator>> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Bruce, Again, Thank you for your information..I guess I'm actually coping OK considering!! I also need sleep meds...Lunesta works about 2 weeks at a time...then I have to stop taking it for 2 nights because it stops working. After the "drug holiday"... some holiday...no sleep for 2 nights.. I start over and get 2 more good weeks of sleep! So that's stressful too! Just knowing that Lunesta after that time will most likely not work is so annoying! On those non- Lunesta nights I do take the Valium to at least make me calm enough to try and sleep. Sometimes it works and.... Again, Thanks for being you! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Bruce wrote: It's tough when you find you're resistant to the meds. The fact that 2 mg of Valium which is a small psychiatric dosage zonks you out shows that. My similar is that many here take Xanax but it will put me completely out, even the smallest dosage. Typically, psychiatrists will explore different families of meds. For instance, if current anti-anxiety meds haven't worked, they may try some duel depression/anxiety meds or different ones such as Cymbalta, Effexor, Lexapro. With anti-depressants, if SSRI's have been problematic, they may go to Wellbutrin. The other place they might go is to older families of meds. This would include tricyclides that they've mostly gotten away from prescribing, such as Elavil and Doxepin. There are also distinctly different approaches to counseling. Your psychiatrist might even recommend someone who specializes in a different school of thought. Last, maybe you don't give yourself credit for managing it as well as you do. You seem to turn to your doctor when you need to and you speak of anxious "days" when nothing seems to work. Many of us will continue to have those "days" but what we're succeeding at it not letting them turn into multiple days or weeks. Sometimes concentrating on how one recovers from the down day rather than expecting to be able to avoid it all together helps. I will sometimes just accept it but say to myself, I'm going to get up and out tomorrow and its going to be a good day. When I go to sleep tonight, this day is over. One other thing, since the valium appears to benefit you some, just maybe a bit too much, is to vary the dosage. Maybe even just 1 mg. For me, counseling has been the key. Now, I do take a sleep med, Ambien CR and I also take Wellbutrin XL which we honestly don't even know if its doing anything. It's just the only anti-depressant or anti-anxiety I tolerated out of around 25 tried and at one time did seem to help. Ambien CR was after at least a dozen other sleep meds. The problems I encountered were generally stomach, sometimes vision or dizziness or tremors and quite often a med that would have the exact opposite of the desired benefit. But I've had so many strange reactions to drugs of this nature. I've had them range from one that gave me all the symptoms of Parkinsons to one that made me sweat profusely to one anti-anxiety that was like speed to me, to an anti-anxiety that made me sleep for 23 out of 25 hours, to a sleep med that caused vision problems and a carb craving that could not be satisfied (you think Prednisone causes weight gains, try that one) to sleep meds that would make me sleep every other night but I'd go 40 hours between sleeping to sleep meds that would give me two hours per night. Sleep has long been an issue for me. Last time I tried with no med, I slept one hour in three nights. I've found meds that have typically worked for several years and then stopped. > > > > > > > > > > > > Hi Gale, > > > > Welcome to the group, and I am sorry to hear of your diagnosis. When > > > > you said that your pulmonologist gave you a prescription for an > > > > anti-anxiety medication, that got my attention, as I too suffer from > > > > depression. There is a great deal of difference between an > > > > anti-anxiety drug and an antidepressant. An antidepressant that is > > > > suited to you will help you cope more calmly with your situation, > > and > > > > in short, be yourself. An anti-anxiety medication will, very > > briefly, > > > > ease your mind somewhat, but won't do anything towards relieving the > > > > all-day feelings of helplessness you feel. > > > > > > > > Only an antidepressant and/or counseling can help those of us > > > > suffering from depression. Taking an antidepressant (in my case > > > > Imipramine) helps me feel normal and takes the edge off of everyday > > > > life. You will be surprised at how much better you can feel with > > > > adequate help. Take care of yourself. > > > > > > > > Jerry/;Mississippi/54/IPF/dx April 05 > > > > > > > > Who believes that hard times help us appreciate the good times even > > more. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Z...I'll pop in here with you and Bruce (hi Bruce!) because I had such sleep problems. I was awake each hr through the night. Dr. put me on Transodone and I'm sleeping well. I think it's also used for depression but I have that too! lol I'm just saying I know what sleep problems are and wishing you good nights to come! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Bruce Bruce, Again, Thank you for your information..I guess I'm actually coping OK considering!!I also need sleep meds...Lunesta works about 2 weeks at a time...then I have to stop taking it for 2 nights because it stops working. After the "drug holiday"... some holiday...no sleep for 2 nights..I start over and get 2 more good weeks of sleep! So that's stressful too! Just knowing that Lunesta after that time will most likely not work is so annoying! On those non- Lunesta nights I do take the Valiumto at least make me calm enough to try and sleep. Sometimes it works and....Again, Thanks for being you! Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Bruce wrote: It's tough when you find you're resistant to the meds. The fact that 2mg of Valium which is a small psychiatric dosage zonks you out showsthat. My similar is that many here take Xanax but it will put mecompletely out, even the smallest dosage. Typically, psychiatrists willexplore different families of meds. For instance, if currentanti-anxiety meds haven't worked, they may try some dueldepression/anxiety meds or different ones such as Cymbalta, Effexor,Lexapro. With anti-depressants, if SSRI's have been problematic, theymay go to Wellbutrin. The other place they might go is to older familiesof meds. This would include tricyclides that they've mostly gotten awayfrom prescribing, such as Elavil and Doxepin.There are also distinctly different approaches to counseling. Yourpsychiatrist might even recommend someone who specializes in a differentschool of thought.Last, maybe you don't give yourself credit for managing it as well asyou do. You seem to turn to your doctor when you need to and you speakof anxious "days" when nothing seems to work. Many of us will continueto have those "days" but what we're succeeding at it not letting themturn into multiple days or weeks. Sometimes concentrating on how onerecovers from the down day rather than expecting to be able to avoid itall together helps. I will sometimes just accept it but say to myself,I'm going to get up and out tomorrow and its going to be a good day.When I go to sleep tonight, this day is over.One other thing, since the valium appears to benefit you some, justmaybe a bit too much, is to vary the dosage. Maybe even just 1 mg.For me, counseling has been the key. Now, I do take a sleep med, AmbienCR and I also take Wellbutrin XL which we honestly don't even know ifits doing anything. It's just the only anti-depressant or anti-anxiety Itolerated out of around 25 tried and at one time did seem to help.Ambien CR was after at least a dozen other sleep meds.The problems I encountered were generally stomach, sometimes vision ordizziness or tremors and quite often a med that would have the exactopposite of the desired benefit. But I've had so many strange reactionsto drugs of this nature. I've had them range from one that gave me allthe symptoms of Parkinsons to one that made me sweat profusely to oneanti-anxiety that was like speed to me, to an anti-anxiety that made mesleep for 23 out of 25 hours, to a sleep med that caused vision problemsand a carb craving that could not be satisfied (you think Prednisonecauses weight gains, try that one) to sleep meds that would make mesleep every other night but I'd go 40 hours between sleeping to sleepmeds that would give me two hours per night. Sleep has long been anissue for me. Last time I tried with no med, I slept one hour in threenights. I've found meds that have typically worked for several years andthen stopped.> > > >> > > >> > > > Hi Gale,> > > > Welcome to the group, and I am sorry to hear of your diagnosis.When> > > > you said that your pulmonologist gave you a prescription for an> > > > anti-anxiety medication, that got my attention, as I too sufferfrom> > > > depression. There is a great deal of difference between an> > > > anti-anxiety drug and an antidepressant. An antidepressant thatis> > > > suited to you will help you cope more calmly with yoursituation,> > and> > > > in short, be yourself. An anti-anxiety medication will, very> > briefly,> > > > ease your mind somewhat, but won't do anything towards relievingthe> > > > all-day feelings of helplessness you feel.> > > >> > > > Only an antidepressant and/or counseling can help those of us> > > > suffering from depression. Taking an antidepressant (in my case> > > > Imipramine) helps me feel normal and takes the edge off ofeveryday> > > > life. You will be surprised at how much better you can feel with> > > > adequate help. Take care of yourself.> > > >> > > > Jerry/;Mississippi/54/IPF/dx April 05> > > >> > > > Who believes that hard times help us appreciate the good timeseven> > more.> > > >> > > >> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 I'll jump in now....I take Ambien....Thank you JESUS...I've been out for the last 2 days and it has been hell. I've been disabled for some time and get all my meds. for "00" If not I would be begging for food. <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Sun, November 8, 2009 5:19:14 PMSubject: Re: Bruce Lunesta didn't work for me. I went through every sleep med they couldfind and then about that time Ambien CR came out. Ambien doesn't workfor me, but Ambien CR does the majority of time. When it stops, I canonly hope they've invented something else. Valium did not work for me asa sleep med. Funny thing is that my Valium is prescribed by mygastroenterologist and I only take it before meals when I'm havingproblems swallowing so it will relax my upper esophagus (Globus).> > > > > >> > > > > >> > > > > > Hi Gale,> > > > > > Welcome to the group, and I am sorry to hear of yourdiagnosis.> > When> > > > > > you said that your pulmonologist gave you a prescription foran> > > > > > anti-anxiety medication, that got my attention, as I toosuffer> > from> > > > > > depression. There is a great deal of difference between an> > > > > > anti-anxiety drug and an antidepressant. An antidepressantthat> > is> > > > > > suited to you will help you cope more calmly with your> > situation,> > > > and> > > > > > in short, be yourself. An anti-anxiety medication will, very> > > > briefly,> > > > > > ease your mind somewhat, but won't do anything towardsrelieving> > the> > > > > > all-day feelings of helplessness you feel.> > > > > >> > > > > > Only an antidepressant and/or counseling can help those ofus> > > > > > suffering from depression. Taking an antidepressant (in mycase> > > > > > Imipramine) helps me feel normal and takes the edge off of> > everyday> > > > > > life. You will be surprised at how much better you can feelwith> > > > > > adequate help. Take care of yourself.> > > > > >> > > > > > Jerry/;Mississippi/ 54/IPF/dx April 05> > > > > >> > > > > > Who believes that hard times help us appreciate the goodtimes> > even> > > > more.> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
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