Re: Kathy fl

[Guest guest]

I like him a lot to. ( DR. Akindepe)He told me I was to heavy to be considered for tx.. I laughed. I had just come off a year of prednisone. I really liked him though. I have decided against TX anyhow. But they are one good group. In five years I have seen so many diff. Dr's. none that I wouldn't see again. The new Dr is Dr. Fauqi, he is from Kansas I think anyhow Dr. Antony has hired him to come to Shands and open a IPF clinic. I think this is a wonderful thing. I am pretty sure it is up and running. I haven't met him. I am so happy for you to be listed. RING PHONE RING.. Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Nope......what is his name? I always see Dr. Akindepe...........absolutely trust that man implicitly!!!'Have a happy afternoon KAthy....fl'PF....4/07 Wtg for TX call > > > > > > > > Hi yall, > > > > My stats still have not leveled off so I now find myself on > > > oxygen 24/7. So now the question is "at what level is the oxygen > > > enough"? When taking supplemental oxygen do we strive for anything > over > > > 90, 95, or 98 - is there a magical number we are shooting for? > > > > In addition, my wife thought she had read on the caregivers > > > portion of this site, that someone felt on average this "3-5 year > life > > > expectancy" is referred to so often to indicate likely survival, > applies > > > not to when first diagnosed but to when one first was placed on > oxygen. > > > What do all of you say to that? > > > > In addition, while here in ton I have been receiving > care > > > at MUSC. My wife and I plan on heading down to Florida for 3-5 > months > > > right after the first of the year and were considering going to > Shands > > > for treatment. Can anyone who has received services there please > pass > > > on your opinions? > > > > > > > > Mike > > > > > > > > > >