Re: time for a few questions/ Mike & Kathy

[Guest guest]

Nope......what is his name? I always see Dr. Akindepe...........absolutely trust

that man implicitly!!!'Have a happy afternoon

KAthy....fl'PF....4/07

Wtg for TX call

> > > >

> > > > Hi yall,

> > > > My stats still have not leveled off so I now find myself on

> > > oxygen 24/7. So now the question is " at what level is the oxygen

> > > enough " ? When taking supplemental oxygen do we strive for anything

> over

> > > 90, 95, or 98 - is there a magical number we are shooting for?

> > > > In addition, my wife thought she had read on the caregivers

> > > portion of this site, that someone felt on average this " 3-5 year

> life

> > > expectancy " is referred to so often to indicate likely survival,

> applies

> > > not to when first diagnosed but to when one first was placed on

> oxygen.

> > > What do all of you say to that?

> > > > In addition, while here in ton I have been receiving

> care

> > > at MUSC. My wife and I plan on heading down to Florida for 3-5

> months

> > > right after the first of the year and were considering going to

> Shands

> > > for treatment. Can anyone who has received services there please

> pass

> > > on your opinions?

> > > >

> > > > Mike

> > > >

> > >

> >

>

[Guest guest]

Peggy

The reason I did mention age however is that this may come in handy for

some here. For instance 1/3 of their lung transplants are to those 65 or

older. This is almost double the national average and I believe shows

that they are more receptive to transplanting older patients. So, if

someone has been told their age is a problem elsewhere, they might very

well want to go to Shands and see. They also do rank as one of the top

hospitals in the country in geriatrics and in cancer treatment, heart

and heart surgery, urology, and endocrinology and diabetes. Their top

rankings were 24th in Heart and 25th in Geriatrics. So, while they might

be a good hospital for anyone, for the older patient they would tend not

to be as dismissive as some hospitals might and they would tend to be

more responsive to some of the issues. As a comparison, the University

of Utah did not transplant a single lung patient 65 or older last year

and in other areas of transplant was well below the national average in

65+. Brigham and Womens, for instance, did 65+ lung transplants at the

rate of only about 1/3 the national average or 6.7%. So, simple math,

Shands lung transplant patient is nearly 5 times as likely to be 65+ as

is the Brigham and Womens patient. For all those who have been told they

are too old, I'd certainly suggest they consider Shands and others who

are more receptive toward transplanting older patients.

Note, Duke is also very receptive as they transplanted 16 lung patients

last year who were 65+. By comparison, while I would rate National

Jewish in the top two or three IPF centers, they did not transplant a

single 65+ patient last year. We have people regularly told they are too

old and I just always suggest they talk to someone else. Different

medical communities do have different philosophies. I would see Shands

as one very receptive and caring for seniors, while not meaning in any

way they don't have plenty of other patients.

> > > >

> > > > Hi yall,

> > > > My stats still have not leveled off so I now find myself on

> > > oxygen 24/7. So now the question is " at what level is the oxygen

> > > enough " ? When taking supplemental oxygen do we strive for

anything

> over

> > > 90, 95, or 98 - is there a magical number we are shooting for?

> > > > In addition, my wife thought she had read on the caregivers

> > > portion of this site, that someone felt on average this " 3-5 year

> life

> > > expectancy " is referred to so often to indicate likely survival,

> applies

> > > not to when first diagnosed but to when one first was placed on

> oxygen.

> > > What do all of you say to that?

> > > > In addition, while here in ton I have been receiving

> care

> > > at MUSC. My wife and I plan on heading down to Florida for 3-5

> months

> > > right after the first of the year and were considering going to

> Shands

> > > for treatment. Can anyone who has received services there please

> pass

> > > on your opinions?

> > > >

> > > > Mike

> > > >

> > >

> >

>

[Guest guest]

Kathy

Dr. Faruqi is the Director of the ILD center. Dr. Akindepe is one of

their three pulmonary transplant physicians in the center. The complete

list of the doctors in the ILD center is here:

http://ild.medicine.ufl.edu/experts.shtml

> > > > >

> > > > > Hi yall,

> > > > > My stats still have not leveled off so I now find myself on

> > > > oxygen 24/7. So now the question is " at what level is the

oxygen

> > > > enough " ? When taking supplemental oxygen do we strive for

anything

> > over

> > > > 90, 95, or 98 - is there a magical number we are shooting for?

> > > > > In addition, my wife thought she had read on the caregivers

> > > > portion of this site, that someone felt on average this " 3-5

year

> > life

> > > > expectancy " is referred to so often to indicate likely

survival,

> > applies

> > > > not to when first diagnosed but to when one first was placed on

> > oxygen.

> > > > What do all of you say to that?

> > > > > In addition, while here in ton I have been receiving

> > care

> > > > at MUSC. My wife and I plan on heading down to Florida for 3-5

> > months

> > > > right after the first of the year and were considering going to

> > Shands

> > > > for treatment. Can anyone who has received services there

please

> > pass

> > > > on your opinions?

> > > > >

> > > > > Mike

> > > > >

> > > >

> > >

> >

>