Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 Joyce,That is such good news! It gives me hope. C_53_Familial IPF_5/09WashingtonTo: Breathe-Support <Breathe-Support >Sent: Sunday, September 13, 2009 9:09:28 AMSubject: Update from Jewish It was a good journey. The car was stupendous and got 48 mpg going 80 mph up tremendous mountains! Stopped at the painted desert and the petrified forest on the way home and the painted desert was breath taking! The petrified forest was a bust. You can see more petrified wood at the vendors surrounding the park. Jewish was wonderful as usual. Dr. Cosgrove said there was no change. All my tests were the same and he considered that good news. He told me that my biopsy showed I did have permanent scarring and there were indications that even though it was the birds that caused it that it might continue but the fact that it had stopped right now was a positive. He also told me if I had kept the birds for a year longer there would be no reversing it and it might as well be IPF so I guess I am very lucky that I went to Jewish and didn't pay attention to my pulmodude hear in Prescott. The only change was the 6 minute walk. I did 10 feet less but my 02 didn't drop as far. 6 months ago my 02 dropped to 92 using 4lpm and this time it dropped to 95 using 4lpm. He said I could drop my 02 to 3 instead of 4 lpm. He is hoping that eventually just sitting around I won't need oxygen at all and only need it when I get up and go out. This, is good news! I am glad I am home. I got home on Friday evening and yesterday all I did was sleep. I slept and slept and slept. I never realized I was so tired. Joyce Rudy AZ birds Quote Link to comment Share on other sites More sharing options...
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