Jerry and Bruce

[Guest guest]

Jerry and Bruce, The back and forth

conversation you have been having in regard to

Intermune and its various drugs and trials has been really informative.

thanks for being here. Isn't it interesting how great their drugs

sound until you actually read

test results!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

jerryb888 wrote:

Bruce,

Thank you for your insight. Here is a case in point which just happened

beginning starting in early August:

My Psoriasis, for what ever reason, became very inflamed and began

spreading rapidly, causing severe swelling of feet and legs. The

plaques also became infected. My dermatologist gave me a steroid

injection and asked if I would check insurance to see if they would pay

for a biologic drug such as Enbrel or Humira. In the mean time, he

wanted to start topical steroids as well. I suggested trying colchicine

or alopurinol, which I knew had been studied for psoriasis. He agreed

to try the colchicine. Now a little more than a month later, my skin is

almost free of plaque. Now my dermatologist is trying it for some of

his other patients who have moderate to severe psoriasis. Colchicine,

or its parent plant, has been used sucessfully for hundreds of years,

especially for gout, though it has other off-label uses such as

psoriasis. It can be a very effective antiinflammatory in other areas,

but drug companies arent't going to send a drug rep around to let them

know. Newer certainly doesn't mean better in this case, and it would be

much more expensive.

I take imipramine for depression. It gets very little billing now that

the newer antidepressants have come on the market. There is little

money to be made with imipramine now, so naturally the newer ones will

come to mind first when a doctor gets out his pen and pad. Newer

doesn't mean better in every case.

When I go to Tulane next month, I will be curious to see what my doctor

says about my taking colchicine. I am pretty sure he will approve.

Thank you for sharing what you know about Intermune. They really do

need to sell Pirfendone, and I look for more press conferences like

yesterday to boost interest.

Jerry/Mississippi/54/IPF/dx April 05

> > > > > >

> > > > > > Hello Jerry, My IPF was diagnosed in

10-2008. I am 73. My

> brother

> > > died from IPF 7-2008 at age 70. It must be our families

disease.

> > > > > >

> > > > > > My brother was an MD who had much faith

in steroids. I saw

> what

> > > effect prednizone had on him. He only lasted 22 months

even with a

> lung

> > > transplant-- the lung was no good match for him. He

developed severe

> > > osteoporosis and aged about 15 years in two years.

> > > > > >

> > > > > > I would like to survive as long as you

have. Are you using

> > > prednizone?

> > > > > > If possible, how much per day and how

long have you used it?

> How

> > > do you feel about side effects?

> > > > > >

> > > > > > I takes me four to six hours each day to

clear my lungs. I

> was

> > > put on 60 mg of prednizone and I reduced it to zero. I

have had a

> very

> > > stressful

> > > > > > summer and so I am taking 20 mg per day.

This is not enough to

> > > clear my lungs. I am now fighting with a full load of

allergies.

> > > > > >

> > > > > > Burns

> > > > > >

> > > > > > Burns

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: jerryb888 <jerryb888@ ..>

> > > > > > To: Breathe-Support@ yahoogroups. com

> > > > > > Sent: Tuesday, September 8, 2009 11:54:18

PM

> > > > > > Subject: Beverley Joy

> > > > > >

> > > > > >

> > > > > > Hello Beverley Joy,

> > > > > > Am I right thinking you have an

appointment with your new

> > > pulmonologist tomorrow the 9th? I hope all goes well

with your first

> > > visit and that you will find a friendly, knowledgeable

lung man. But

> you

> > > know if you aren't happy, there are other qualified

doctors near

> you.

> > > Take care of yourself and I'll be looking to hear some

news. As i'll

> be

> > > traveling down to tomorrow for the Celtic Fest,

I may not

> have

> > > access to a computer link as often as here, but I'll

check in when I

> can

> > > and see if you have posted. Take care. Oh yes, notice I

typed in

> blue

> > > like Mamasher? Since we are going to use blue for our

color, I may

> start

> > > emailing to everyone in blue all the time. What do you

think?

> > > > > > Jerry?Mississippi/ 54/IPF/dx April 05

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>