Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 Thank you Jerry I do ok most of the time but I do get overwhelmed at times and just need to refocus. It is great to have this group that understands what it feels like. If it was just me I would not have as much concern but I am raising my 17 year old son and need to get him thru High school he is a Junior this year so just two more years. I am going to drop by the SSI office on Friday. Again thanks for the encouragement and advice Walt on Whidbey IPF,Nsip.Uip. 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Subject: Re: tiredTo: Breathe-Support Date: Tuesday, September 15, 2009, 12:30 PM Walt,It is hard to believe that your doctor doesn't want you to do the right thing and help you get into a situation in which you can safely breathe as you should. If you file for disability with Social Security, he will have to cooperate with them. Social Security may also ask you to see an independent pulmonologist at their expense. If they do, this would add some time. But knowing this may ease your mind as to your doctor's helping you. If you go down to your local Social Security office, I think you will be reassurred as reguards your chances for being declaired disabled. If you can talk confidentially with someone in personnel at your work, you may feel easier about such things as insurance and retirement benefits which may affect your disability payments. I was self-employed, but I remember well the insecurity of leaving that security blanket behind. I am still looking for that bit of self worth I left behind at the job.Jerry/Mississippi/ 54/IPF/dx April 05 >> Hello> I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do. > I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications.> I guess I start with looking for a new Doc. > > I am tired of feeling like it’s always a hassle to get anywhere. > > Just venting> Thanks for the understanding Ear > > Walt on Whidbey IPF,Nsip.Uip. 06 > > > > Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 not sure, but i think your son might be able to get some benefits until he reaches a certain age glad you are going to the ss office, ask about your son Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: tired (Jerry)To: Breathe-Support Date: Tuesday, September 15, 2009, 3:47 PM Thank you Jerry I do ok most of the time but I do get overwhelmed at times and just need to refocus. It is great to have this group that understands what it feels like. If it was just me I would not have as much concern but I am raising my 17 year old son and need to get him thru High school he is a Junior this year so just two more years. I am going to drop by the SSI office on Friday. Again thanks for the encouragement and advice Walt on Whidbey IPF,Nsip.Uip. 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>Subject: Re: tiredTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 15, 2009, 12:30 PM Walt,It is hard to believe that your doctor doesn't want you to do the right thing and help you get into a situation in which you can safely breathe as you should. If you file for disability with Social Security, he will have to cooperate with them. Social Security may also ask you to see an independent pulmonologist at their expense. If they do, this would add some time. But knowing this may ease your mind as to your doctor's helping you. If you go down to your local Social Security office, I think you will be reassurred as reguards your chances for being declaired disabled. If you can talk confidentially with someone in personnel at your work, you may feel easier about such things as insurance and retirement benefits which may affect your disability payments. I was self-employed, but I remember well the insecurity of leaving that security blanket behind. I am still looking for that bit of self worth I left behind at the job.Jerry/Mississippi/ 54/IPF/dx April 05 >> Hello> I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do. > I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications.> I guess I start with looking for a new Doc. > > I am tired of feeling like it’s always a hassle to get anywhere. > > Just venting> Thanks for the understanding Ear > > Walt on Whidbey IPF,Nsip.Uip. 06 > > > > Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€> Quote Link to comment Share on other sites More sharing options...
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