Re: Exciting update, had to share

[Guest guest]

Congratulations on meeting such a monumental milestone in this project!!

Dayna

_____

From: Brock

Sent: Thursday, February 24, 2005 11:09 AM

To: RSS-Support

Subject: Exciting update, had to share

Hi everyone -

I don't know if anyone truly appreciates the magnitude of the

Guidebook project. I certainly didn't when I started it one year

ago. Having now read 130 different medical journal articles and

logging all of the data into a database ... I have finished the

first 40 written pages of the Guidebook!!!! Yahoo!!!!

I finished the Welcome, Introduction, How to Diagnose RSS vs SGA,

How is RSS/SGA Caused and the big section -- Characteristics and

Functional Abnormalities of RSS and Short SGA Children.

I wanted to give you guys the update in case people thought the

project had fallen into a big hole....

However, I still have a lot to write. And this is just the rough

draft. My dear partner Katy Frissora is now being emailed the first

section so she can cut it to pieces and put it back together again

in a better format from the original.

I honestly don't want to commit yet to when it will be done. I am

learning to take it one day at a time, and keep writing.... But I

do believe now that this will be a monumental piece of information,

one that I wish we had when we were given the RSS diagnosis.

There is NO WAY that I could take on this project without so many

volunteers helping in different sections. Thanks to everyone.

[Guest guest]

Thank you for all your hard work. I truly appreciate it.

Marcy na mom

Brock wrote:

Hi everyone -

I don't know if anyone truly appreciates the magnitude of the

Guidebook project. I certainly didn't when I started it one year

ago. Having now read 130 different medical journal articles and

logging all of the data into a database ... I have finished the

first 40 written pages of the Guidebook!!!! Yahoo!!!!

I finished the Welcome, Introduction, How to Diagnose RSS vs SGA,

How is RSS/SGA Caused and the big section -- Characteristics and

Functional Abnormalities of RSS and Short SGA Children.

I wanted to give you guys the update in case people thought the

project had fallen into a big hole....

However, I still have a lot to write. And this is just the rough

draft. My dear partner Katy Frissora is now being emailed the first

section so she can cut it to pieces and put it back together again

in a better format from the original.

I honestly don't want to commit yet to when it will be done. I am

learning to take it one day at a time, and keep writing.... But I

do believe now that this will be a monumental piece of information,

one that I wish we had when we were given the RSS diagnosis.

There is NO WAY that I could take on this project without so many

volunteers helping in different sections. Thanks to everyone.

[Guest guest]

hey jenn!!

i APPLUAD you, katy and everyone that has worked on this guide book

for our children!!! it will be such a great help to not only us,

but doctors to learn more about rss and what should be done for

them!!!

THANKS AGAIN!!! ((HUGS)) to you all!!!

jodie c.

-- In RSS-Support , " Brock " <magicrss@m...>

wrote:

>

> Hi everyone -

>

> I don't know if anyone truly appreciates the magnitude of the

> Guidebook project. I certainly didn't when I started it one year

> ago. Having now read 130 different medical journal articles and

> logging all of the data into a database ... I have finished the

> first 40 written pages of the Guidebook!!!! Yahoo!!!!

>

> I finished the Welcome, Introduction, How to Diagnose RSS vs SGA,

> How is RSS/SGA Caused and the big section -- Characteristics and

> Functional Abnormalities of RSS and Short SGA Children.

>

> I wanted to give you guys the update in case people thought the

> project had fallen into a big hole....

>

> However, I still have a lot to write. And this is just the rough

> draft. My dear partner Katy Frissora is now being emailed the

first

> section so she can cut it to pieces and put it back together again

> in a better format from the original.

>

> I honestly don't want to commit yet to when it will be done. I am

> learning to take it one day at a time, and keep writing.... But I

> do believe now that this will be a monumental piece of

information,

> one that I wish we had when we were given the RSS diagnosis.

>

> There is NO WAY that I could take on this project without so many

> volunteers helping in different sections. Thanks to everyone.

>

>

[Guest guest]

,

I am putting the finishing touches on the info I obtained from the emails on the

listserve

for my section. When I am finished, it there's anything else you need help on -

proofing,

etc. I'd be happy to pitch in.

Kim C.

> Hi everyone -

>

> I don't know if anyone truly appreciates the magnitude of the

> Guidebook project. I certainly didn't when I started it one year

> ago. Having now read 130 different medical journal articles and

> logging all of the data into a database ... I have finished the

> first 40 written pages of the Guidebook!!!! Yahoo!!!!

>

> I finished the Welcome, Introduction, How to Diagnose RSS vs SGA,

> How is RSS/SGA Caused and the big section -- Characteristics and

> Functional Abnormalities of RSS and Short SGA Children.

>

> I wanted to give you guys the update in case people thought the

> project had fallen into a big hole....

>

> However, I still have a lot to write. And this is just the rough

> draft. My dear partner Katy Frissora is now being emailed the first

> section so she can cut it to pieces and put it back together again

> in a better format from the original.

>

> I honestly don't want to commit yet to when it will be done. I am

> learning to take it one day at a time, and keep writing.... But I

> do believe now that this will be a monumental piece of information,

> one that I wish we had when we were given the RSS diagnosis.

>

> There is NO WAY that I could take on this project without so many

> volunteers helping in different sections. Thanks to everyone.

>

>

[Guest guest]

jenn,

i have to say it is a blessing to have you in this along with other helper. i

am sure it will be a great brakethrough for us all to have the info in all one

place. thanks you so much. i know when it is done it will be a real great thing.

good job on what you have done.

cara mom to jacob

Brock wrote:

Hi everyone -

I don't know if anyone truly appreciates the magnitude of the

Guidebook project. I certainly didn't when I started it one year

ago. Having now read 130 different medical journal articles and

logging all of the data into a database ... I have finished the

first 40 written pages of the Guidebook!!!! Yahoo!!!!

I finished the Welcome, Introduction, How to Diagnose RSS vs SGA,

How is RSS/SGA Caused and the big section -- Characteristics and

Functional Abnormalities of RSS and Short SGA Children.

I wanted to give you guys the update in case people thought the

project had fallen into a big hole....

However, I still have a lot to write. And this is just the rough

draft. My dear partner Katy Frissora is now being emailed the first

section so she can cut it to pieces and put it back together again

in a better format from the original.

I honestly don't want to commit yet to when it will be done. I am

learning to take it one day at a time, and keep writing.... But I

do believe now that this will be a monumental piece of information,

one that I wish we had when we were given the RSS diagnosis.

There is NO WAY that I could take on this project without so many

volunteers helping in different sections. Thanks to everyone.