Re: To Grace & a question for everyone

[Guest guest]

Hey mimi, sharon is on holiday in japan with her husband and a friend for about

3 weeks i think,i'm sure she will be online sometime ( as she wouldnt survive

that long without surfing the net,he he) hope this puts your mind to rest.

Mimi wrote:

I agree..if we could get some guys that would be great!

Mimi

P.S.- RSS adults..anyone heard from Sharon lately..haven't seen a post

from her in a while!

>

> We would love to hear from some of the guys. We love the info we get

> from you girls, but stories like him having a baby are great

> inspirations for us. It's very interesting to hear the differences

in

> social acceptance as well.

>

> At the 2003 convention there was a 29 yr old man that spoke with the

> ladies and he was great. I can't seem to come up with his name off

> the top of my head now. His mother was such a doll...I would love to

> know how he is and his family.

>

> Thanks for connecting the 2 groups.

>

> le, mom to:

> Shye 10, Brock 8, and Coby (rss) & Carlee 2 yr old twin terrors

[Guest guest]

Psst! I'm not in Japan just yet. We leave a week from today so y'all are stull

stuck with me

for now <G>.

I haven't been writing much simply because there hasn't been a whole lot to

write <wink>.

The new way that Yahoo has their messages is also a royal PITA and it makes it a

lot

harder to go through dozens of messages...so I haven't been reading ANY of my

Yahoo

Groups nearly as often.

-Sharon-

Just an RSS kid who grew up

39y2w,2d, 4'6.75 " , let's not talk about my weight...I'm hoping that walking all

over Japan

for 3 weeks will be enough exercise to help me lose 5 or 10 lbs! <wink>

> I agree..if we could get some guys that would be great!

>

> Mimi

>

> P.S.- RSS adults..anyone heard from Sharon lately..haven't seen a post

> from her in a while!

[Guest guest]

Thanks Kim T. from Kim C.

> Hi Grace and Kim C.

> THere are male rss adults on the adults rss site so maybe some of us rss

ladies could

encourage them to post on this site for you to quiz them about boys issues that

we don't

know much about. P.S. One of the rss men has just become a father to a girl and

the baby

doesnt appear to have rss, from talking with dr.r .stanhope i didnt think it

would have rss

as the doc told me he knows of 2 other rss men who fathered children and they

also ok.

>

> Kacey171 <capuano_k@p...> wrote:

>

> Hi Grace,

>

> I'd love to hear about your son, as I have an 11-year-old boy with RSS & we

have not

> gotten an adult male perspective on RSS, as all the adult RSS people on this

listserve are

> women. Alos, your post sparked a question for me. Does anyone know how old

the

> oldest RSS person is with a g-tube? I fear that my son will have one his

whole life.

>

> Kim C.

>

>

>

> im wondering what the oldest person with rss is known to date ..my son is now

22 and i

> would like to meet others his age and ask their advice about coping with rss.

thanks

grace

>

>

>

>

>

>

[Guest guest]

wow have fun in japan

cara mom to jacob

sharonkurland wrote:

Psst! I'm not in Japan just yet. We leave a week from today so y'all are stull

stuck with me

for now <G>.

I haven't been writing much simply because there hasn't been a whole lot to

write <wink>.

The new way that Yahoo has their messages is also a royal PITA and it makes it a

lot

harder to go through dozens of messages...so I haven't been reading ANY of my

Yahoo

Groups nearly as often.

-Sharon-

Just an RSS kid who grew up

39y2w,2d, 4'6.75 " , let's not talk about my weight...I'm hoping that walking all

over Japan

for 3 weeks will be enough exercise to help me lose 5 or 10 lbs! <wink>

> I agree..if we could get some guys that would be great!

>

> Mimi

>

> P.S.- RSS adults..anyone heard from Sharon lately..haven't seen a post

> from her in a while!