discussing SGA with ignorant people

[Guest guest]

I have a question on how to respond to people who ask me why Mia is

so small. Here are the 3 senario's I encounter the most:

Scenario 1: Total strangers coming up to us on a daily basis and

they say " She is sooooo small! " I usually just smile and say " Yes,

she is! "

Scenerio 2: Friends/people I barely know saying " Why is she so

small? " Do I go into the whole explanation of SGA? Do I say she

has a growth disorder? What is an easy, quick explanation? (I know

I don't have to explain anything at all but usually people inquire

because they mean well, or are concerned)

Scenerio 3: Some friends/family/neighbors know Mia has had a lot of

tests, therapy and a recent visit to Dr. H in New York. They all

want to know what is going on. When I explain that Mia does not

have RSS but has SGA and I explain a little what SGA is they

say " Oh, so she is just little " .

Meanest scenerio: I was at the bus stop to pick up my other kids

from school one day last year and the bus was a little late. I made

a comment (in front of a few people) that I wish the bus would hurry

because Mia has PT. A " friend " said " When are you going to stop

with all these doctor appts. and therapy and let her be a normal

little kid? " I turned and got into the car with my kids and drove

Mia to PT, crying the whole way (under my sunglasses so the kids

couldn't see). Things like this are very hurtful. I do the best to

make Mia be her best and people like this make these flip, hurtful

comments that I remember forever.

Anyway, thanks for reading this.

nne (Mia's mom!!)