Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Unless you're already up to very high levels of oxygen, your doctor's advise sounds insane. Get a new doctor at an ILD center, such as one of the IPF Centers of Excellence. You should probably be doing the opposite and attending pulmonary rehab. But this is not a lie there and wait to die disease until its much worse that I imagine yours is. Again, not knowing your levels of oxygen hard to say. But the face you want to be doing things and feel capable tells me you probably can and should. > > I'm new to this, little scared. My pulmonologist said my IPF was getting worse, I'm already on oxygen 24/7. He told me not exert myself and just watch TV. This really pissed me off. > I'm not the type of person to just lye there and wait to die. > I'm thinking of getting a second opinion and a NEW Dr. > Any suggestions?? JOHN > Quote Link to comment Share on other sites More sharing options...
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