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Re: Liquids & gtube kids

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Hi

Liam has a gtube and quite bad reflux, at present he is not eating

anything, he does however drink some water, we are finding that he

drinks more the colder it is. I dont know if the coldness stops his

throat hurting or its just ne of those things. If I put ice cubes in

a blender and make snow(as liam calls it) he will sit and eat/drink

the whole cup. Do you find Colin drinks different amounts if its

colder or warmer?

About the carbs, have you ever added polyjoule, this is a complex

carbohydrate powder, that we add to Liams formula to maintain his

blood sugar and add calories, it hasnt got much taste and dissolves

easily so you can add it to any food, if you cany get polyjoule i

think polycose is something similar available in America.

Good luck

Jody(mum to Liam RSS and Cameron)

>

> Do you have a hard time getting your gtube kids to drink a big

> volume of liquids? Colin will drink water, bubbly water (his

> favorite) and milk but in very small amounts like maybe 1 or 2 oz.

> max. We are weaning him off daytime bolus feeds since he is eating

> so well, but I need to get 18oz. of liquids in him a day which is

> impossible! Is this normal for gtube kids or could it be related

to

> reflux?

>

>

> Colin (RSS, gtube) and Hayden - 4 year 2mo. twins

> Grant - 13 mo.

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