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hypoglycemia question

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Hi guys

Charlie has started having hypo episodes in the last few months and

it seems to be getting worse. He is fed through a g tube every 3

hours and on a pump overnight. Last week his pump broke and didn't

alarm so I only discovered it about midnight when I happened to

check on him. He had not had any food for 4.5 hours and his blood

glucose level was 2.2 and he was very symptomatic ie floppy, not

foccusing etc we gave him apple juice then fed him formula every

hour. In the next 12 hours he had 2 more hypos and we were unable to

rouse him after the 3rd one so we took him to our local hospital

where he was injected with glucoden. Charlie's paediatrician and

endo have suggested that we learn to inject him with glucoden

whenever this happens as apple juice did not work - does anyone know

of any other option rather than needles? ie any higher sugar fast

acting juice etc. I know there is a link between RSS and

hypoglycemia - is anyone else having these problems to this extent?

Do they grow out of it?

He is soon to start growth hormones and his endo said this will help

the hypoglycemia as well.

Thanks

Alison (mum to 3yrs and Charlie 18mths 6.5kgs)

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