Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Hi , Did you get SSI Disability just for Kyla's RSS or did you include other illness' as well? We tried several years ago and were turned down. Ken M > is anyone here on disability? kylas E.C.I. doctor and our pediatrician > told us to apply for social security disability since i can't work > because of kylas illness' all the time, so i did and we got it, i > noticed others talking about not beingable to afford certain things, > and just wondering if anyone has applied, because it is an option!!! > stephanie kyla 4 RSS jonathan 19 months, bad boy LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 We applied too and my husband makes too much to qualify. Isaac has RSS and hypothyroiidism (which is also considered a disability). Our ECI people said it depends on who you talk to and what kind of day they are having They also said most people get turned down the first time but to try again. Mimi Mom to Isaac 1-19-04 & Sofia due 9-27-05 > is anyone here on disability? kylas E.C.I. doctor and our pediatrician > told us to apply for social security disability since i can't work > because of kylas illness' all the time, so i did and we got it, i > noticed others talking about not beingable to afford certain things, > and just wondering if anyone has applied, because it is an option!!! > stephanie kyla 4 RSS jonathan 19 months, bad boy LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 hey stephanie!! we were actually receiving SSI for over a year, but we just lost it because of my husbands OT he sometimes get puts our gross income too high (too bad we dont get that gross income in full to live off of!!!) so now i am fighting with social security who wants us to now pay back over $1400!!! jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 We were denied and told to come back if Zoe ever gets a feeding tube. We couldn't survive on one income with only one medical insurance so I had to find a job that had benefits and a flexible schedule. (mom to Zoe 3yrs (RSS) and 5yrs (non-RSS) blondesteph_00 wrote: is anyone here on disability? kylas E.C.I. doctor and our pediatrician told us to apply for social security disability since i can't work because of kylas illness' all the time, so i did and we got it, i noticed others talking about not beingable to afford certain things, and just wondering if anyone has applied, because it is an option!!! stephanie kyla 4 RSS jonathan 19 months, bad boy LOL --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 -i included EVERYTHING i made them ask every doctor she has ever seen for her medical records from pediatrician to G.I. to pulmenologist to ENT to endo to geneticist to ...get the point, and they did and it took almost 4 months for them to review it but once they decided yes, we got a check from the day we applied, so 4 months worth of disability for those who applied but were denied i would suggest trying again because i know how tough financially it gets, and the money is to help pay your bills that she helps run ( even though she picks out something at walmart and gets it no matter how much it is because it is HER money, and today she opened a savings account to put a little in every month so i suggest reapply and ask social security to get all the medical documents ever used, they pay for them so they get them.............stephanie kyla 4 RSS jonathan 19 months non-RSS -- In RSS-Support , " kmerrith " <kkm@i...> wrote: > Hi , > > Did you get SSI Disability just for Kyla's RSS or did you include other > illness' as well? > > We tried several years ago and were turned down. > > > Ken M > > > > > is anyone here on disability? kylas E.C.I. doctor and our > pediatrician > > told us to apply for social security disability since i can't work > > because of kylas illness' all the time, so i did and we got it, i > > noticed others talking about not beingable to afford certain things, > > and just wondering if anyone has applied, because it is an option!!! > > stephanie kyla 4 RSS jonathan 19 months, bad boy LOL Quote Link to comment Share on other sites More sharing options...
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