28 year old female with RSS

[Guest guest]

Hi everyone!

My name is . I am a twenty -eight year old female who was

diagnosed with Silver Syndrom at age one and a half. I have

had very little opportunity to network or visit with other persons

and families affected by RSS.

As I look over the different messages and photos you all have posted

I am amazed at the similarities of my own life. There are many

struggles with RSS as a child, adolescent, and as an adult. I am so

thankful there is now a support system in place for children and

familes.

I am now four feet 9 and a half inches tall and weigh about 75

pounds. I am small but mighty! I have a college degree in

psychology, and spend my days doing counseling and case management

for children and families.

I would love to visit with other adults with RSS, but also would

love to visit with parents or children. I would like to answer any

questions or help in any way I can. I will try and post my pictures

soon!

Hope to hear from you all soon!!