Re: Getting orthodontic help

[Guest guest]

Thank Jenn,

I know it is going to be a long appointment, but like you, I figured

it was worth it even if we are just educating a bunch of doctors and

students about RSS. My concern was the geneticist, I really didn't

want someone to try to hand me a different diagnosis. Luckily we see

Dr H the week after, so we can discuss any results with her.

Pattie

> >

> > Thank you to everyone for your ideas about orthodontists.

> Apparently

> > I got transferred to the correct people at University Of Michigan

> and

> > I think I sparked their interest with Jon's case. We have an

> > appointment in May that will last from 8:30 a.m. until 3:30 p.m.

> and

> > we will have hearing, speech, and other testing. Because Jon

> doesn't

> > have these problems, I'm a little concerned about extra testing, I

> > don't really need to find out that there is something wrong I

> didn't

> > know about!

> >

> > They also want him to see a geneticist because they say his growth

> > problems may be something else and they would like someone to see

> him.

> > I tried to reassure them that his doctor knows what she is talking

> > about and I'm sure he has RSS but they want to look anyway. That

> > should be interesting.

> >

> > The good part though is that by the end of all this, we should

> have a

> > team and a plan for orthodontics.

> >

> > Thanks for all your help!

> >

> > Pattie