Leah S.

[Guest guest]

Hi again,

The MAGIC Foundation (Major Aspects of Growth in Children) holds a

Convention in Chicago every summer. There is a great RSS/SGA

division and we learned more than we ever thought possible last

year. We're in Canada and our Dr's have very little info on RSS and

except for one they don't seem to want to learn about it for

Olivia's sake.

About the breast feeding I was able to breast feed Olivia for 6

months and had to stop. She was a very, very, very unhappy baby and

we finally discovered she was allergic to dairy and soy and

unfortunatly my milk upset her a lot also. After about 12 hours on

the new formula we had a brand new child!! As much as it pained me

to stop nursing it turned out to be the best for her.

Check out the MAGIC foundation, it think it's

www.magicfoundation.org There might be a bit more info there for

you to check out if you haven't found it already.

Are you on Yahoo messenger? If so go ahead and add me to your

list. my user name is leahdaf2000.

Chat with you soon!

Leah Fuller

> > Hi, I just happened to stumble across this group> my name is

Leah, I

> > am 22 and I was born with silver russel syndrome. I've had a few

> > questions that no one seems able to answer. I have a few things

that

> > are odd about me and i'm not sure if they're related to the SRS

> > because there is so little knowledge of the disorder. I was born

> > without a uterus, ribs over my heart and without one of my

kidneys.

> > the other thing is i used to have chronic ear infections and i

have

> > bell's palsey. If anyone knows anything about any of these

things

> > please write back and well...even if you don't : ) have a good

day

> >

> > *leah*

>

>

>

>

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