Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 hi i am new to this support group, yeah!!! my name is stephanie and i have a daughter, KYLA, who is 4 and has RSS....she was diagnosed 2 1/2 years ago by a geneticist...she is 31 inches tall and weighs 24 pounds as of last week at her 4 year check-up..we are in the process of getting her back on periactin because she has not eaten in two weeks, maybe a piece of bread or a bite of pizza, but not really 'eating' we go next week for that and maybe even another feeding tube.....she starts school this fall in pre-k and i am worried about the schools here.......she has started to develope breast tissue so i think puberty is in our near future...please anyone email me or however this works. ecspecially if you have a son-daughter around kylas age thanks and god bless all you mothers/fathers/grandparents who are raising a rss child!!!!!!!!!!!!!!!!!!!!!!!!!!!! stephanie Quote Link to comment Share on other sites More sharing options...
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