Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 DEBI, If I remember correctly, would be in a lot of pain after eating when he was about 1 yr old (rolling around on the ground..??). Do they think it was because of the insulin? Also, on another note, did you in-laws ever get used to you questioning the doctors? I know you had some struggles with that. J > > Can anyone tell me about their experiences with insulin dumping? > , who is now 3.5 years, did not have an inherent blood sugar > problem until after his pyroplasty operation at age 1 which ended up > opening the bottom of his stomach too far. Having spent 18 months on a > rice diet, he gained no weight and is now on a continuous pump regime > with an elemental formula of broken down proteins (and hence higher > sugar content) for suspected protein allergies. This has highlighted > just how serious his insulin dumping now is. A glucose tolerance test > sent his blood sugars plummeting below 30 and he has trouble now > coping with an IV drip. > > For now, we have agreed to the 24 hour feeding regime to try and > control the volatility in BS. The current formula however appears to > be too easily digestible and through trial and error the doctors have > agreed to add 200 mls per day of Rice Dream (more complex sugar > content) and 200 ml of breast milk (which is protecting the intestinal > wall more). BS levels have stabilized a little around 60 but I would > really appreciate anyone sharing their experiences. > > many thanks. > > Debi, mother to in Japan(3.5 years, RSS, 8 kilos, 83 cm) and > Sora (6 months, non rss, 8 kilos, 65 cm) > > > > Quote Link to comment Share on other sites More sharing options...
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