(Ken) Re: An old timer needs a shoulder!

[Guest guest]

Hi Stacie,

We went through a similar thing with . In a 2 year period, his

net weight gain was 0 (zero). He lost weight, then gained it back,

then lost it again, etc. So after almost 2 years with no net gain and

Janet going nuts we had a brief but terse talk with the doctor she

agreed to up the growth hormone and the periactin. We too were just

not getting the results.

Yes, the Boston Red Sox winning the world series was great but even

better was beating the NY Yankees in seven games in Yankee Stadium.

To add insult to injury, the Red Sox home opener will be against the

NY Yankees. The Yankees will have sit there and watch while the Red

Sox get their rings and raise the World Champion Banner.

Anyway, welcome back and I hope you can get some answers.

Ken M

> > >

> > >

> > >

> > > Hi, all! For those that remember me.... " hello again " . For the

> > many

> > > of you that are new, I was the third person to join this

> listserve

> > > waaay back when.

> > >

> > > My son, , is now 8 yrs. old as of 12/7 and was first

> diagnosed

> > at

> > > birth. He has assemetry, former g-tuber, on GH and full of

life!

> > >

> > > Anyway, after coming off the g-tube in April of 2003 his weight

> > gain

> > > has gone downhill. We have tried feeding therapy, nutrionists

> > appts.

> > > and just plain old BEGGING and tricking him to eat more.

Anyway,

> > he

> > > has not gained weight since last May and at 34 lbs. and 43

inches

> > > tall, the doctors are now concerned. My fear is having to go

> back

> > to

> > > the g-tube. Not because I hated the g-tube or that it was a

> > bother,

> > > but just for the simple fact of having his little tummy go

> through

> > > another surgery.

> > >

> > > He will have a gut-dismotility test done very soon to see if

> > > something is going on there.

> > >

> > > Anyway, I thought we were past the difficult part of RSS and

felt

> > > pretty educated on the subject, but find myself falling back to

> > > stress, sadness, frustration, and terribly

worried!!!!!!!!!!!!!!

> I

> > > look at my little guy and just want to cry out of pure mental

> > > exhaustion.

> > >

> > > For those of you that are pray-ers or go to Church, could

> sure

> > > use your prayers. I appreciate this very much.

> > >

> > > I hope that your RSS situations are going well and pray for

these

> > > little ones all the time!

> > >

> > > Stacie

> > > Mom to daughter, (non-RSS) and son, (RSS).