Re: Hi Peeps

[Guest guest]

Hi Group, I am just so messed up with my e-mail. I am reading from the internet but it wants to act up too.. LOL my luck. I am reading everyone.. laughing, crying, missing my contact.. I will be back..with my own e-mail.. Love and Prayers. PeggyPS.. My nurse Jeanie comes tomorrow. I am excited to see her for the first time.I am doing really well. All is well on that front.From:

"BlueLiddy@..." To: Breathe-Support Sent: Mon, November 16, 2009 12:20:18 PMSubject: Re: Re: scared

Why thank you, Dyane- I get so frustrated when people tell me that what's wrong with me is fat. Some even uggest that I could do it if I "really wanted to do it". Others say you just do MIND OVER MATTER! You are a strong person, Joyce...you can do anything you WANT to do..." don't be weak..you have to do it! your house is a mess! You have no pride in your home or you would keep it tiddy and clean! A friend suggested I could do anything I wanted and it is that I just don't want to do it. She thinks the fact that I am so fatigued is an excuse because she gets very tired and yet she gets up and does it. And all the people who say if I just lost weight so many of my problems would disappear! Lazy and fat! Lazy and Fat! that is the mantra of those around me! One friend says she has COPD and she keeps her house clean...and does all sorts of things and doesn't need oxygen and she can't figure out why I need oxygen! They are such nice caring people but they some how expect me to rise to the occasion and overcome my illness. In fact I had a close,close friend who always said to me"STOP THAT YOU SOUND LIKE A 90 YEAR OLD WOMAN!!!" Like I had control over my breathing. At the time I didn't know I was sick and we were doing things like moving stuff and unconsciously I started panting and couphing.... I didn't even know I was doing it. But did she say: Joyce your breathing is sounding very bad, you should see a doctor." ? no! She just said I was trying to get attention and out of doing the work....When I went to NJH she said I should just stop trying to get better and accept what the "doctor said" and go on with my life. Had I done that I would be dead now. We are no longer friends..she was so judgmental.. people are so judgmental. I wish I were skinny. Maybe then people would know that I just can't do what I used to do? My pulomodude said he would like me to lose some weight if I could but it is not a top priority..mostly he wanted me to have fun...as much fun as I could have. That was his prescription for me. Joyce rudy az birds

In a message dated 11/16/2009 9:49:00 A.M. US Mountain Standard Time, dyane.billings@ ball-mcgraw. com writes:

Joyce,Bet I'm fatter than you are LOL Joyce we love youDyane Phoenix ipf 02>> I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds>

[Guest guest]

Glad to hear you are doing well Peggy!PJ in OH, 54, IPF 09, Sjogren's 95 Re: Re: scared

Why thank you, Dyane- I get so frustrated when people tell me that what's wrong with me is fat. Some even uggest that I could do it if I "really wanted to do it". Others say you just do MIND OVER MATTER! You are a strong person, Joyce...you can do anything you WANT to do..." don't be weak..you have to do it! your house is a mess! You have no pride in your home or you would keep it tiddy and clean! A friend suggested I could do anything I wanted and it is that I just don't want to do it. She thinks the fact that I am so fatigued is an excuse because she gets very tired and yet she gets up and does it. And all the people who say if I just lost weight so many of my problems would disappear! Lazy and fat! Lazy and Fat! that is the mantra of those around me! One friend says she has COPD and she keeps her house clean...and does all sorts of things and doesn't need oxygen and she can't figure out why I need oxygen! They are such nice caring people but they some how expect me to rise to the occasion and overcome my illness. In fact I had a close,close friend who always said to me"STOP THAT YOU SOUND LIKE A 90 YEAR OLD WOMAN!!!" Like I had control over my breathing. At the time I didn't know I was sick and we were doing things like moving stuff and unconsciously I started panting and couphing.... I didn't even know I was doing it. But did she say: Joyce your breathing is sounding very bad, you should see a doctor." ? no! She just said I was trying to get attention and out of doing the work....When I went to NJH she said I should just stop trying to get better and accept what the "doctor said" and go on with my life. Had I done that I would be dead now. We are no longer friends..she was so judgmental.. people are so judgmental. I wish I were skinny. Maybe then people would know that I just can't do what I used to do? My pulomodude said he would like me to lose some weight if I could but it is not a top priority..mostly he wanted me to have fun...as much fun as I could have. That was his prescription for me. Joyce rudy az birds

In a message dated 11/16/2009 9:49:00 A.M. US Mountain Standard Time, dyane.billings@ ball-mcgraw. com writes:

Joyce,Bet I'm fatter than you are LOL Joyce we love youDyane Phoenix ipf 02>> I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds>