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Re: Update on (Ken)

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Hi Ken,

I guess you forgot to smile. My husband is what one might consider

a dinosaur; he doesn't believe in electronic pictures just the

good old fashion black and white ones from film. He needs a project

so I will have him go to Kinko's and digitalize .

Beth

> > > >

> > > >

> > > > For those of you who missed my prior posts on (age

> 6),

> > I

> > > > can give you some more current information since we just got

> > back

> > > > from a visit to her doctor and he continues to feel she is

> > > > progressing nicely after discontinuing growth hormone a bit

> more

> > > > than a year ago. grew 6 inches in the past year

to

> 45

> > > > inches and 43 lbs.

> > > >

> > > > When we discovered had RSS at age two with normal

GH

> > > > levels, we floundered around with a variety of approaches

but

> > this

> > > > by far has been the most successful and least invasive. The

> > > > hypoglycemic episodes, periodic seizures, hyperactivity that

> > pushed

> > > > her to the point of exhaustion, difficulty concentrating,

> reflux

> > > and

> > > > other gut related issues are now behind us.

> > > >

> > > > Hopefully my truncated post did not bend anyone's ear to far

> > this

> > > > time.

> > > >

> > > > Beth

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