Betty's Prednisone Question

[Guest guest]

Betty -

I think many of us have been on prednisone, with other medications, and by

itself. The dose can run from low to quite high levels. Personally, I was

initially put on a 60mg/day dose for 5 month. I hated it, but it may be the

reason I have been stable for 3 years. It is a hard call. You will probably

find every imaginable response here. Some swear by it, others will have nothing

to do with it. A very personal thing. There have been some improvements as

prednisone helps reduce inflammation. Improvements in the quality of life. It

seems to make breathing easier in some. It does not reduce the need for oxygen,

rehab or other courses of treatment, simply makes it a bit more tolerable. You

will get other responses... this is just mine.

Stefani 61 year old Utahn

ILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea

4/2009

>

> I am repeating my question to the group because I am not sure that the first

one was sent properly.

>

> Has anyone had satisfactory results from prednisone? I am newly diagnosed with

IPF probably caused by medication (Nitrofurontoin). I have 20-30% lung

involvement and am not on oxygen yet. I am very physically fit.

>

> Your reply will be greatly appreciated.\

> BSK

>

[Guest guest]

Betty, Welcome to the group.

In regard to prednisone..it's the best/worst drug around.

On the positive side...I'm stable for 4 years because of it,

on a silly side.... my arthritis doesn't bother me, my once poker

straight hair is now curly and my nails are stronger!

On the negative side, I have osteoporosis, GERD, very thin skin,easily

bruise,and I have

cataracts, the start of glaucoma, mood swings,shaky hands...basically

just about all the

misery it can bring too. I take more medications to mitigate the

side-effects.

There is a data base attached to the bottom of this message

area...click on database and you'll find many other responses

to the prednisone question.

It is definitely a personal choice...do your research..talk to the docs

and you make the decision. Don't allow

doctors to force you into a treatment you don't want..it's your body!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Stefani wrote:

Betty -

I think many of us have been on prednisone, with other medications, and

by itself. The dose can run from low to quite high levels. Personally,

I was initially put on a 60mg/day dose for 5 month. I hated it, but it

may be the reason I have been stable for 3 years. It is a hard call.

You will probably find every imaginable response here. Some swear by

it, others will have nothing to do with it. A very personal thing.

There have been some improvements as prednisone helps reduce

inflammation. Improvements in the quality of life. It seems to make

breathing easier in some. It does not reduce the need for oxygen, rehab

or other courses of treatment, simply makes it a bit more tolerable.

You will get other responses... this is just mine.

Stefani 61 year old Utahn

ILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006,

Sleep Apnea 4/2009

>

> I am repeating my question to the group because I am not sure that

the first one was sent properly.

>

> Has anyone had satisfactory results from prednisone? I am newly

diagnosed with IPF probably caused by medication (Nitrofurontoin).

I have 20-30% lung involvement and am not on oxygen yet. I am very

physically fit.

>

> Your reply will be greatly appreciated.\

> BSK

>