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Hello to everyone,

I have not been on the listserve for a long time as our computer had crashed. I

am trying to catch up a bit. I also wanted to let you know that we saw Dr. H a

few weeks ago and as some of you know, there was a possibility that Dr. H was

going to recommend a tube. Well, the great news is that Jonah gained over 2

pounds since our last visit and grew well to. All this with a stomach virus and

cold in between. Dr. H. was thrilled and therefore no feeding tube! If he

continues like this and does not spill ketones, he will not need one. We are

so happy and must live one day at a time and pray that he keeps up the great

work. She increased his Periactin again and the increased Miralax has made all

the difference for him too. She asked that I tell all parents how bad it is for

the kids to be constipated, how the Miralax helped and the difference it can

make in terms of weight gain.

I am thinking of you all and look forward to seeing many of you in Chicago!

, Jonah's mom

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Guest guest

Congratulations on a visit full of good news! It is amazing the weight our

kids can gain when they can poop!!

Dayna, Mom to Alyssa

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of Berlin/Gene Bowen

Sent: Monday, April 25, 2005 8:27 PM

To: RSS-Support

Subject: weight gain

Hello to everyone,

I have not been on the listserve for a long time as our computer had

crashed. I am trying to catch up a bit. I also wanted to let you know that

we saw Dr. H a few weeks ago and as some of you know, there was a

possibility that Dr. H was going to recommend a tube. Well, the great news

is that Jonah gained over 2 pounds since our last visit and grew well to.

All this with a stomach virus and cold in between. Dr. H. was thrilled and

therefore no feeding tube! If he continues like this and does not spill

ketones, he will not need one. We are so happy and must live one day at a

time and pray that he keeps up the great work. She increased his Periactin

again and the increased Miralax has made all the difference for him too.

She asked that I tell all parents how bad it is for the kids to be

constipated, how the Miralax helped and the difference it can make in terms

of weight gain.

I am thinking of you all and look forward to seeing many of you in Chicago!

, Jonah's mom

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