Stirling saw a consultant today

[Guest guest]

Basically he has confirmed RSS as best he can (he has seen a

previous case many years ao and recognised it in Stirling) and is

now going to refer us to the growth specialists at Addenbrookes

Cambridge for plans and treatment. He may need Growth Hormone

Therapy and/or Periactin but that will be discussed with the experts.

He did mention overnight feeding and Gastromy button (?) I got the

impression that is only considered if all else fails to put weight

on him. Any thoughts folks? is it a horrendous prospect? it can't

be any worse than NG feeding can it?

I was also given an RSS Length chart and Stirling appears on the

average line for it. It's really good to actually see him on a

chart instead of being way below it!

So all in all it was a positive experience and the consultant was

very supportive. He gave me advice on how to 'shut up' health

people who wish to insult me!

so it looks like we're going to become 'proper' members of this

group after all!

cheers

T and Stirling:)