When talking to your doctor...

[Guest guest]

Dear Sheryl,

Never ever, ever, ever, feel bad about your women's intuition,

mothering instinct or gut feeling about your child with RSS.

Primary care taker's get in tune with their child in a way that few

doctors ever bond with a patient. Your presence day and night with

your child makes you the expert regardless of your savvy about this

syndrome.

Many of us on this list serve went months and even years " knowing "

something wasn't right with our kids. Sometimes we were bullied

into doing things that weren't necessary or conunterproductive to

our childs health. Other times when we went forward with something

that was ultimately beneficial for our child, we were chastized for

being meddlesome, bothersome or over reactive. The primary care

physician who got mad at me for enrolling Connor in the State of

Virginia's Early Intervention program also recommended that I not

see a Pediatric G.I. specialist for Connor's silent reflux. I

finally fired him and found a doctor who would communicate with all

of Connor's doctor's. You really need to create a team atmosphere

when dealing with so many specialists. Not many of us have the

wonderful luxury of having Dr. H. treat our kids. I find that she

treats the whole syndrome whereas I need five specialists to do what

Dr. H. does alone.

You are doing your best. The fact that you are here and learning is

a huge step in the right direction. So, don't be so hard on

yourself. You are an amazing parent and will do what is best for

your child.

Take Care,

Mom to Graham 8 ADD; Cameron 5; Connor RSS Kyphosis G-Tube Periactin

Prevacid Zantac GH in two weeks.

[Guest guest]

Hi Sheryl,

Listen to your heart. It whispers so you will have to listen

carefully.

Ken M

>

> Dear Sheryl,

>

> Never ever, ever, ever, feel bad about your women's intuition,

> mothering instinct or gut feeling about your child with RSS.

> Primary care taker's get in tune with their child in a way that few

> doctors ever bond with a patient. Your presence day and night with

> your child makes you the expert regardless of your savvy about this

> syndrome.

>

> Many of us on this list serve went months and even years " knowing "

> something wasn't right with our kids. Sometimes we were bullied

> into doing things that weren't necessary or conunterproductive to

> our childs health. Other times when we went forward with something

> that was ultimately beneficial for our child, we were chastized for

> being meddlesome, bothersome or over reactive. The primary care

> physician who got mad at me for enrolling Connor in the State of

> Virginia's Early Intervention program also recommended that I not

> see a Pediatric G.I. specialist for Connor's silent reflux. I

> finally fired him and found a doctor who would communicate with all

> of Connor's doctor's. You really need to create a team atmosphere

> when dealing with so many specialists. Not many of us have the

> wonderful luxury of having Dr. H. treat our kids. I find that she

> treats the whole syndrome whereas I need five specialists to do

what

> Dr. H. does alone.

>

> You are doing your best. The fact that you are here and learning is

> a huge step in the right direction. So, don't be so hard on

> yourself. You are an amazing parent and will do what is best for

> your child.

>

> Take Care,

>

>

> Mom to Graham 8 ADD; Cameron 5; Connor RSS Kyphosis G-Tube

Periactin

> Prevacid Zantac GH in two weeks.